Change search
Link to record
Permanent link

Direct link
BETA
Egmar, Ann-CharlotteORCID iD iconorcid.org/0000-0003-2504-343X
Publications (10 of 23) Show all publications
Kreimeier, S., Åström, M., Burström, K., Egmar, A.-C., Gusi, N., Herdman, M., . . . Greiner, W. (2019). EQ-5D-Y-5L: developing a revised EQ-5D-Y with increased response categories.. Quality of Life Research, 28(7), 1951-1961
Open this publication in new window or tab >>EQ-5D-Y-5L: developing a revised EQ-5D-Y with increased response categories.
Show others...
2019 (English)In: Quality of Life Research, ISSN 0962-9343, E-ISSN 1573-2649, Vol. 28, no 7, p. 1951-1961Article in journal (Refereed) Published
Abstract [en]

PURPOSE: EQ-5D-Y is a generic measure of health status for children and adolescents aged 8-15 years. Originally, it has three levels of severity in each dimension (3L). This study aimed to develop a descriptive system of EQ-5D-Y with an increased number of severity levels and to test comprehensibility and feasibility.

METHODS: The study was conducted in Germany, Spain, Sweden and the UK. In Phase 1, a review of existing instruments and focus group interviews were carried out to create a pool of possible labels for a modified severity classification. Participants aged 8-15 rated the severity of the identified labels in individual sorting and response scaling interviews. In Phase 2, preliminary 4L and 5L versions were constructed for further testing in cognitive interviews with healthy participants aged 8-15 years and children receiving treatment for a health condition.

RESULTS: In Phase 1, a total of 233 labels was generated, ranging from 37 (UK) to 79 labels (Germany). Out of these, 7 to 16 possible labels for each dimension in the different languages were rated in 255 sorting and response scaling interviews. Labels covered an appropriate range of severity on the health continuum in all countries. In Phase 2, the 5L version was generally preferred (by 68-88% of the participants per country) over the 4L version.

CONCLUSIONS: This multinational study has provided a version of the EQ-5D-Y with 5 severity levels in each dimension. This extended version (EQ-5D-Y-5L) requires testing its psychometric properties and its performance compared to that of the original EQ-5D-Y-3L.

Place, publisher, year, edition, pages
Springer, 2019
Keywords
Adolescent, Children, EQ-5D-Y, EQ-5D-Y-3L, EQ-5D-Y-5L, Health-related quality of life (HRQoL)
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:rkh:diva-2748 (URN)10.1007/s11136-019-02115-x (DOI)30739287 (PubMedID)
Available from: 2019-02-25 Created: 2019-02-25 Last updated: 2019-08-30Bibliographically approved
Gedin, F., Dansk, V., Egmar, A.-C., Sundberg, T. & Burström, K. (2019). Patient-reported improvements of pain, disability, and health-related quality of life following chiropractic care for back pain - A national observational study in Sweden. Journal of Bodywork & Movement Therapies, 23(2), 241-246
Open this publication in new window or tab >>Patient-reported improvements of pain, disability, and health-related quality of life following chiropractic care for back pain - A national observational study in Sweden
Show others...
2019 (English)In: Journal of Bodywork & Movement Therapies, ISSN 1360-8592, E-ISSN 1532-9283, Vol. 23, no 2, p. 241-246Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Chiropractic care is a common but not often investigated treatment option for back pain in Sweden. The aim of this study was to explore patient-reported outcomes (PRO) for patients with back pain seeking chiropractic care in Sweden.

METHODS: Prospective observational study. Patients 18 years and older, with non-specific back pain of any duration, seeking care at 23 chiropractic clinics throughout Sweden were invited to answer PRO questionnaires at baseline with the main follow-up after four weeks targeting the following outcomes: Numerical Rating Scale for back pain intensity (NRS), Oswestry Disability Index for back pain disability (ODI), health-related quality of life (EQ-5D index) and a visual analogue scale for self-rated health (EQ VAS).

RESULTS: 246 back pain patients answered baseline questionnaires and 138 (56%) completed follow-up after four weeks. Statistically significant improvements over the four weeks were reported for all PRO by acute back pain patients (n = 81), mean change scores: NRS -2.98 (p < 0.001), ODI -13.58 (p < 0.001), EQ VAS 9.63 (p < 0.001), EQ-5D index 0.22 (p < 0.001); and for three out of four PRO for patients with chronic back pain (n = 57), mean change scores: NRS -0.90 (p = 0.002), ODI -2.88 (p = 0.010), EQ VAS 3.77 (p = 0.164), EQ-5D index 0.04 (p = 0.022).

CONCLUSIONS: Patients with acute and chronic back pain reported statistically significant improvements in PRO four weeks after initiated chiropractic care. Albeit the observational study design limits causal inference, the relatively rapid improvements of PRO scores warrant further clinical investigations.

Place, publisher, year, edition, pages
Elsevier, 2019
National Category
Nursing
Identifiers
urn:nbn:se:rkh:diva-2838 (URN)10.1016/j.jbmt.2018.02.012 (DOI)31103102 (PubMedID)
Available from: 2019-06-12 Created: 2019-06-12 Last updated: 2019-06-12Bibliographically approved
Jonsson, M., Schuster, M., Protudjer, J. L., Bergström, A., Egmar, A.-C. & Kull, I. (2017). Experiences of Daily Life Among Adolescents With Asthma - A Struggle With Ambivalence. Journal of Pediatric Nursing: Nursing Care of Children and Families, 35, 23-29
Open this publication in new window or tab >>Experiences of Daily Life Among Adolescents With Asthma - A Struggle With Ambivalence
Show others...
2017 (English)In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 35, p. 23-29Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: There is limited knowledge about how adolescents with asthma view their disease in daily life and how these views impact on management. The aim of this study was to describe experiences of daily life, with particular focus on thoughts, feelings and management of adolescents with asthma.

METHODS: In this qualitative study, data were obtained from 10 interviews with adolescents (aged 16-18 years) with asthma recruited from the Swedish population-based prospective birth cohort, BAMSE. Data were analysed through Systematic Text Condensation.

RESULTS: Experiences of daily life among adolescents with asthma were defined in four categories: Insight and understanding; Asthma not the focus of daily life; Being acknowledged and, Being affected by asthma symptoms. The adolescents had developed an insight into and understanding of their disease, but did not want asthma to be the focus of their daily lives. The adolescents wanted their asthma to be acknowledged, but not to the point that they were defined by their asthma. They reported having many asthma symptoms, especially during physical activity, but also described a desire to feel healthy, "normal" and like their peers.

CONCLUSIONS: Having asthma in adolescence involves several struggles with ambivalence between adapting socially, feeling healthy and managing one's asthma.

IMPLICATIONS IN CLINICAL PRACTICE: The provision of person-centred care may be one way to handle the ambivalence among adolescents with asthma and thereby help them to manage their asthma.

Keywords
Adolescence, Asthma care, Daily life experiences, Person-centered care
National Category
Nursing
Identifiers
urn:nbn:se:rkh:diva-2432 (URN)10.1016/j.pedn.2017.02.005 (DOI)28728764 (PubMedID)
Available from: 2017-08-22 Created: 2017-08-22 Last updated: 2017-08-22Bibliographically approved
Jonsson, M., Bergström, A., Egmar, A.-C., Hedlin, G., Lind, T. & Kull, I. (2016). Asthma during adolescence impairs health-related quality of life. Journal of Allergy and Clinical Immunology: In Practice, 4(1), 144-146
Open this publication in new window or tab >>Asthma during adolescence impairs health-related quality of life
Show others...
2016 (English)In: Journal of Allergy and Clinical Immunology: In Practice, ISSN 2213-2198, E-ISSN 2213-2201, Vol. 4, no 1, p. 144-146Article in journal (Refereed) Published
Abstract [en]

Clinical Implications

Asthma during adolescence impairs health-related quality of life, especially if the asthma is uncontrolled. To use questions about health-related quality of life (HRQoL) and markers associated with asthma control in the clinic can identify adolescents with an increased risk for impaired HRQoL.

Keywords
asthma, health-related quality of life, adolecence
National Category
Respiratory Medicine and Allergy
Identifiers
urn:nbn:se:rkh:diva-1903 (URN)10.1016/j.jaip.2015.07.020 (DOI)26342743 (PubMedID)
Available from: 2015-09-17 Created: 2015-09-17 Last updated: 2017-05-17Bibliographically approved
Bergfors, S., Åström, M., Burström, K. & Egmar, A.-C. (2015). Measuring health-related quality of life with the EQ-5D-Y instrument in children and adolescents with asthma. Acta Paediatrica, 104(2), 167-173
Open this publication in new window or tab >>Measuring health-related quality of life with the EQ-5D-Y instrument in children and adolescents with asthma
2015 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 104, no 2, p. 167-173Article in journal (Refereed) Published
Abstract [en]

AIM: Asthma is one of the most common chronic paediatric diseases worldwide and affects different dimensions of health-related quality of life. This study tested the feasibility and convergent validity of using the EQ-5D-Y instrument on children and adolescents with asthma.

METHODS: A cross-sectional design was chosen, and children with asthma, aged from 8 to 16 years, were recruited from clinics in Stockholm, Sweden. To test convergent validity, the EQ-5D-Y instrument was combined with the Paediatric Quality of Life Questionnaire.

RESULTS: The EQ-5D-Y proved feasible as nearly 96% of the 94 respondents completed all items on the questionnaire. High and moderate correlations between the two instruments were found for the dimensions of 'doing usual activities' and 'activity limitations' and for 'having pain or discomfort' and 'symptoms'. The visual analogue scale of the ED-5D-Y correlated with the Paediatric Quality of Life Questionnaire total score and the self-rated health question. The dimensions on the EQ-5D-Y with most reported problems were 'usual activities', 'pain or discomfort' and 'worried, sad or unhappy'.

CONCLUSION: The EQ-5D-Y instrument seemed to provide feasibility and convergent validity for measuring health-related quality of life in children and adolescents with asthma.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2015
Keywords
Asthma in children; Health-related quality of life; Quality of life instruments
National Category
Respiratory Medicine and Allergy Nursing
Identifiers
urn:nbn:se:rkh:diva-1406 (URN)10.1111/apa.12863 (DOI)25393977 (PubMedID)
Available from: 2015-01-26 Created: 2015-01-26 Last updated: 2017-12-05Bibliographically approved
von Strauss, E., Egmar, A.-C. & Löfgren, T. (2015). The Swedish Red Cross University College. Journal of Humanitarian Studies, 4, 50-61
Open this publication in new window or tab >>The Swedish Red Cross University College
2015 (English)In: Journal of Humanitarian Studies, ISSN 2186-9774, Vol. 4, p. 50-61Article in journal (Other (popular science, discussion, etc.)) Published
National Category
Nursing
Identifiers
urn:nbn:se:rkh:diva-1835 (URN)
Available from: 2015-05-06 Created: 2015-05-06 Last updated: 2017-05-17Bibliographically approved
Nilsson, J., Johansson, E., Egmar, A.-C., Florin, J., Leksell, J., Lepp, M., . . . Gardulf, A. (2014). Development and validation of a new tool measuring nurses self-reported professional competence: The nurse professional competence (NPC) Scale. Nurse Education Today, 34(4), 574-580
Open this publication in new window or tab >>Development and validation of a new tool measuring nurses self-reported professional competence: The nurse professional competence (NPC) Scale
Show others...
2014 (English)In: Nurse Education Today, ISSN 0260-6917, E-ISSN 1532-2793, Vol. 34, no 4, p. 574-580Article in journal (Refereed) Published
Abstract [en]

Objectives

To develop and validate a new tool intended for measuring self-reported professional competence among both nurse students prior to graduation and among practicing nurses. The new tool is based on formal competence requirements from the Swedish Board of Health and Welfare, which in turn are based on WHO guidelines.

Design

A methodological study including construction of a new scale and evaluation of its psychometric properties.

Participants and settings

1086 newly graduated nurse students from 11 universities/university colleges.

Results

The analyses resulted in a scale named the NPC (Nurse Professional Competence) Scale, consisting of 88 items and covering eight factors: “Nursing care”, “Value-based nursing care”, “Medical/technical care”, “Teaching/learning and support”, “Documentation and information technology”, “Legislation in nursing and safety planning”, “Leadership in and development of nursing care” and “Education and supervision of staff/students”. All factors achieved Cronbach's alpha values greater than 0.70. A second-order exploratory analysis resulted in two main themes: “Patient-related nursing” and “Nursing care organisation and development”. In addition, evidence of known-group validity for the NPC Scale was obtained.

Conclusions

The NPC Scale, which is based on national and international professional competence requirements for nurses, was comprehensively tested and showed satisfactory psychometrical properties. It can e.g. be used to evaluate the outcomes of nursing education programmes, to assess nurses' professional competences in relation to the needs in healthcare organisations, and to tailor introduction programmes for newly employed nurses.

Place, publisher, year, edition, pages
Elsevier, 2014
Keywords
nurses' competence, professional nursing, nursing education, nursing students, graduate nurses, quality of care, safety in healthcare, scale development, validation, psychometric properties
National Category
Health Sciences Nursing
Identifiers
urn:nbn:se:rkh:diva-720 (URN)10.1016/j.nedt.2013.07.016 (DOI)23938092 (PubMedID)
Available from: 2013-09-24 Created: 2013-09-24 Last updated: 2017-12-06Bibliographically approved
Burström, K., Bartonek, Å., Broström, E., Sun, S. & Egmar, A.-C. (2014). EQ-5D-Y as a health-related quality of life measure in children and adolescents with functional disability in Sweden: testing feasibility andvalidity. Acta Paediatrica, 103(4), 426-435
Open this publication in new window or tab >>EQ-5D-Y as a health-related quality of life measure in children and adolescents with functional disability in Sweden: testing feasibility andvalidity
Show others...
2014 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 103, no 4, p. 426-435Article in journal (Refereed) Published
Place, publisher, year, edition, pages
John Wiley & Sons, 2014
Keywords
Child and adolescent health, EQ-5D-Y, Functional disability, Health measurement, Health-related quality of life
National Category
Pediatrics Nursing
Identifiers
urn:nbn:se:rkh:diva-836 (URN)10.1111/apa.12557 (DOI)24761459 (PubMedID)
Available from: 2014-05-15 Created: 2014-05-15 Last updated: 2017-12-05Bibliographically approved
Jonsson, M., Egmar, A.-C., Hallner, E. & Kull, I. (2014). Experiences of living with asthma: a focus group study with adolescents and parents of children with asthma. Journal of Asthma, 51(2), 185-192
Open this publication in new window or tab >>Experiences of living with asthma: a focus group study with adolescents and parents of children with asthma
2014 (English)In: Journal of Asthma, ISSN 0277-0903, E-ISSN 1532-4303, Vol. 51, no 2, p. 185-192Article in journal (Refereed) Published
Abstract [en]

Objective: The goal for asthma treatment is that every individual, so far as possible, shall live without symptoms and exacerbations. Patients and health care professionals sometimes have different perceptions of what is important for achieving good quality of life. This work aims to describe the experiences among adolescents as well as those of parents with young children living with asthma. Methods: Four focus group interviews were performed, two with parents of young children and two with adolescents. The data were qualitatively analyzed, using Systematic Text Condensation. Result: Three themes relevant to the participants’ experiences of living with asthma were presented; strategies, frustrations and expectations. The adolescents wanted to be like their peers and developed their own strategies for self-management of asthma, which included not always taking medication as prescribed. The parents emphasized frustration regarding not being believed, lack of understanding feelings of loneliness, or anxiety. One identified expectation was that the participants wanted to be met with competence and understanding in asthma care from health care professionals. Another expectation expressed among parents was that teachers in nursery and primary schools should have more knowledge and understanding on how to care for children with asthma. Conclusion: Living with asthma leads to developing personal strategies in self-management of asthma. Moreover both parents and adolescents had expectations of being met by competent and understanding health care professionals. Developing a partnership between patients and health care professionals could be a successful way to improve the care of patients with asthma.

Place, publisher, year, edition, pages
Informa Healthcare, 2014
Keywords
Asthma care, experiences, health care, interviews, partnership
National Category
Medical and Health Sciences Nursing
Identifiers
urn:nbn:se:rkh:diva-733 (URN)10.3109/02770903.2013.853080 (DOI)
Available from: 2013-11-29 Created: 2013-11-29 Last updated: 2017-12-06Bibliographically approved
Jonsson, M., Bergström, A., Egmar, A.-C., Wickman, M., Lind, T. & Kull, I. (2014). Health related quality of life among adolescents with asthma. Paper presented at European-Academy-of-Allergy-and-Clinical-Immunology Congress, Copenhagen, June 7-11, 2014.. Allergy. European Journal of Allergy and Clinical Immunology, 69(Suppl. 99: SI), 328-328
Open this publication in new window or tab >>Health related quality of life among adolescents with asthma
Show others...
2014 (English)In: Allergy. European Journal of Allergy and Clinical Immunology, ISSN 0105-4538, E-ISSN 1398-9995, Vol. 69, no Suppl. 99: SI, p. 328-328Article in journal, Meeting abstract (Other academic) Published
National Category
Respiratory Medicine and Allergy
Identifiers
urn:nbn:se:rkh:diva-1051 (URN)
Conference
European-Academy-of-Allergy-and-Clinical-Immunology Congress, Copenhagen, June 7-11, 2014.
Available from: 2014-09-25 Created: 2014-09-25 Last updated: 2017-12-05Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-2504-343X

Search in DiVA

Show all publications