Endre søk
RefereraExporteraLink to record
Permanent link

Direct link
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • harvard-anglia-ruskin-university
  • Annet format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annet språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
Parental Uncertainty About Transferring Their Adolescent with Congenital Heart Disease to Adult Care
Karolinska Institutet / Astrid Lindgren Children's Hospital.
University of Gothenburg / KU Leuven, Department of Public Health and Primary Care, Leuven, Belgium.
Karolinska Institutet / Astrid Lindgren Children's Hospital.
University of Gothenburg.
Vise andre og tillknytning
2019 (engelsk)Inngår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 5, nr 2, s. 380-387Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

AIMS: To study parent's levels of uncertainty related to the transfer from pediatric to adult care in adolescents with Congenital Heart Disease (CHD) and to identify potentially correlating factors.

BACKGROUND: Parents acknowledge that during transition they struggle with finding ways of feeling secure in handing over the responsibility and letting go of control. Well-prepared and informed parents who feel secure are most likely better skilled to support their adolescent and to hand over the responsibility.

DESIGN: A cross-sectional study.

METHODS: Overall, 351 parents were included (35% response rate). Parental uncertainty was assessed using a Linear Analogue Scale (0-100). Data was collected between January - August 2016. Potential correlates were assessed using the readiness for transition questionnaire and sociodemographic data.

RESULTS: The mean parental uncertainty score was 42.5. Twenty-four percent of the parents had a very low level of uncertainty (score 0-10) and 7% had a very high level (score 91-100). Overall, 26% of the mothers and 36% of the fathers indicated that they had not started thinking of the transfer yet. The level of uncertainty was negatively associated with the level of perceived overall readiness. Adolescents' age, sex, CHD complexity and parental age were not related to uncertainty.

CONCLUSION: A wide range in the levels of uncertainty was found. Parents who were less involved in the care, or perceived their adolescent as readier for the transition, felt less uncertain. Still, thirty percent of the parents had not started to think about the transfer to adult care. This article is protected by copyright. All rights reserved.

sted, utgiver, år, opplag, sider
2019. Vol. 5, nr 2, s. 380-387
Emneord [en]
adolescents, congenital heart disease, nursing, parental uncertainty, readiness for transition, transfer, transition
HSV kategori
Identifikatorer
URN: urn:nbn:se:rkh:diva-2715DOI: 10.1111/jan.13852PubMedID: 30209810OAI: oai:DiVA.org:rkh-2715DiVA, id: diva2:1254600
Tilgjengelig fra: 2018-10-09 Laget: 2018-10-09 Sist oppdatert: 2019-03-26bibliografisk kontrollert

Open Access i DiVA

fulltext(297 kB)56 nedlastinger
Filinformasjon
Fil FULLTEXT01.pdfFilstørrelse 297 kBChecksum SHA-512
8748f064548658d2544f0afe4364058b500d204df96d1f4dc16caa0d947a42c45c05036be363b9455a6e5bd573b43ea2e8072e1c64ec9d2feec958d1892ac5d2
Type fulltextMimetype application/pdf

Andre lenker

Forlagets fulltekstPubMed

Personposter BETA

Nisell, Margret

Søk i DiVA

Av forfatter/redaktør
Nisell, Margret
Av organisasjonen
I samme tidsskrift
Journal of Advanced Nursing

Søk utenfor DiVA

GoogleGoogle Scholar
Totalt: 56 nedlastinger
Antall nedlastinger er summen av alle nedlastinger av alle fulltekster. Det kan for eksempel være tidligere versjoner som er ikke lenger tilgjengelige

doi
pubmed
urn-nbn

Altmetric

doi
pubmed
urn-nbn
Totalt: 63 treff
RefereraExporteraLink to record
Permanent link

Direct link
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • harvard-anglia-ruskin-university
  • Annet format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annet språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf