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Family members' life situation and experiences of different caring organisations during allogeneic haematopoietic stem cells transplantation: A qualitative study
Sophiahemmet University.
The Swedish Red Cross University College, Department of Nursing and Care.ORCID iD: 0000-0003-0622-7794
Sophiahemmet University / Södersjukhuset, Karolinska Institutet.
Karolinska University Hospital / Karolinska Institutet.
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2016 (English)In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354Article in journal (Refereed) Epub ahead of print
Abstract [en]

The aim of this study was to describe family members' life situation and experiences of care in two different care settings, the patient's home or in hospital during the acute post-transplantation phase after allogeneic haematopoietic stem cell transplantation (HSCT). Data were collected through semi-structured interviews with 14 family members (seven women and seven men). An inductive qualitative content analysis was used to analyse the data. The majority of the family members' (n = 10) had experiences from home care. The findings show the family members' voice of the uncertainty in different ways, related with the unknown prognosis of the HSCT, presented as Being me being us in an uncertain time. The data are classified into; To meet a caring organisation, To be in different care settings, To be a family member and To have a caring relationship. Positive experiences such as freedom and security from home care were identified. The competence and support from the healthcare professionals was profound. Different strategies such as adjusting, having hope and live in the present used to balance to live in an uncertain time. The healthcare professionals need to identify psychosocial problems, and integrate the psychosocial support for the family to alleviate or decrease anxiety during HSCT, regardless of the care setting.

Place, publisher, year, edition, pages
2016.
National Category
Nursing
Identifiers
URN: urn:nbn:se:rkh:diva-2308DOI: 10.1111/ecc.12610PubMedID: 27859940OAI: oai:DiVA.org:rkh-2308DiVA: diva2:1049749
Note

This study was funded and supported by grants from Sophiahemmet University, the Swedish Blood Cancer Society, and the Swedish Nursing Society.

Available from: 2016-11-25 Created: 2016-11-25 Last updated: 2016-11-28Bibliographically approved

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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
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