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Parenting stress among parents of children with congenital diaphragmatic hernia
Karolinska Institutet / Astrid Lindgren Children’s Hospital.
The Swedish Red Cross University College, Department of Technology and Welfare.ORCID iD: 0000-0002-0221-8631
Karolinska Institutet / Astrid Lindgren Children’s Hospital.
Karolinska Institutet / Astrid Lindgren Children’s Hospital.
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2017 (English)In: Pediatric surgery international (Print), ISSN 0179-0358, E-ISSN 1437-9813, Vol. 33, no 7, 761-769 p.Article in journal (Refereed) Published
Abstract [en]

PURPOSE: The aim of this study was to examine parental stress among parents of children with congenital diaphragmatic hernia (CDH).

METHODS: Between 2005 and 2009, a total of 51 children with CDH were treated at Astrid Lindgren Children's Hospital. The survival rate at discharge was 86% and long-term survival rate 80%. One parent each of the long-term survivors (41 children) was included in the present study, and 34 parents (83%) agreed to participate. Participants received the Swedish Parenthood Stress Questionnaire (SPSQ). The questionnaire was supplemented by data from case records.

RESULTS: Parents of children with CDH, who had been supported by ECMO or had a long hospital stay, showed significantly higher overall parental stress. Mothers scored an overall higher parental stress compared with fathers. A prenatal diagnosis of CDH or lower parental educational level resulted in significantly higher parental stress in some of the factors.

CONCLUSIONS: Parental stress in parents of children with CDH seems to increase with the severity of the child's malformation. Mothers tend to score higher parental stress than fathers.

Place, publisher, year, edition, pages
2017. Vol. 33, no 7, 761-769 p.
Keyword [en]
Congenital diaphragmatic hernia, Extracorporeal membrane oxygenation, Long-term follow-up, Parental stress, Prenatal diagnosis
National Category
Nursing
Identifiers
URN: urn:nbn:se:rkh:diva-2412DOI: 10.1007/s00383-017-4093-4PubMedID: 28527042OAI: oai:DiVA.org:rkh-2412DiVA: diva2:1098953
Available from: 2017-05-29 Created: 2017-05-29 Last updated: 2017-07-14Bibliographically approved

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Nisell, Margret

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