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Overall and domain-specific life satisfaction when living with familial Alzheimer's disease risk: A quantitative approach.
Karolinska University Hospital / Karolinska Institute.
Karolinska Institute / Karolinska University Hospital.
Karolinska Institute / Karolinska University Hospital.
The Swedish Red Cross University College, Department of Technology and Welfare.ORCID iD: 0000-0002-1754-4421
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2017 (English)In: Nursing and Health Sciences, ISSN 1441-0745, E-ISSN 1442-2018Article in journal (Refereed) Epub ahead of print
Abstract [en]

In this study, we explored life satisfaction and sense of coherence in relation to biopsychosocial variables in individuals at risk for the development of familial Alzheimer's disease. Forty nine individuals (response rate: 96%) were interviewed. Life satisfaction was found to be high for the majority of participants. Those who were older than the expected age of onset of disease, those <6 years' inclusion in the Familial Alzheimer's disease biomarker study, and males tended to experience positive psychological health. Sense of coherence was positively associated with satisfaction with life as a whole, psychological health, vocation, and economy. Women seem to be more vulnerable than men, and attention should be given to those who have not passed the age of expected symptom onset. Early and recurrent counseling and psychosocial support were found to be essential. Issues related to vocation and economy are areas of concern, and are closely associated with sense of coherence, life satisfaction, and psychological health. This study emphasizes the importance of professional teams working together with the patient and their families.

Place, publisher, year, edition, pages
2017.
Keyword [en]
familial Alzheimer's disease, life satisfaction, psychosocial support, quality of life, sense of coherence
National Category
Nursing
Identifiers
URN: urn:nbn:se:rkh:diva-2433DOI: 10.1111/nhs.12365PubMedID: 28776874OAI: oai:DiVA.org:rkh-2433DiVA: diva2:1135157
Available from: 2017-08-22 Created: 2017-08-22 Last updated: 2017-08-22Bibliographically approved

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