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EQ-5D-Y-5L: developing a revised EQ-5D-Y with increased response categories.
Bielefeld University, Bielefeld, Germany.
Karolinska Institutet / Stockholm County Council.
Karolinska Institutet / Stockholm County Council.
The Swedish Red Cross University College, Department of Health Sciences. Karolinska Institutet.ORCID iD: 0000-0003-2504-343X
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2019 (English)In: Quality of Life Research, ISSN 0962-9343, E-ISSN 1573-2649, Vol. 28, no 7, p. 1951-1961Article in journal (Refereed) Published
Abstract [en]

PURPOSE: EQ-5D-Y is a generic measure of health status for children and adolescents aged 8-15 years. Originally, it has three levels of severity in each dimension (3L). This study aimed to develop a descriptive system of EQ-5D-Y with an increased number of severity levels and to test comprehensibility and feasibility.

METHODS: The study was conducted in Germany, Spain, Sweden and the UK. In Phase 1, a review of existing instruments and focus group interviews were carried out to create a pool of possible labels for a modified severity classification. Participants aged 8-15 rated the severity of the identified labels in individual sorting and response scaling interviews. In Phase 2, preliminary 4L and 5L versions were constructed for further testing in cognitive interviews with healthy participants aged 8-15 years and children receiving treatment for a health condition.

RESULTS: In Phase 1, a total of 233 labels was generated, ranging from 37 (UK) to 79 labels (Germany). Out of these, 7 to 16 possible labels for each dimension in the different languages were rated in 255 sorting and response scaling interviews. Labels covered an appropriate range of severity on the health continuum in all countries. In Phase 2, the 5L version was generally preferred (by 68-88% of the participants per country) over the 4L version.

CONCLUSIONS: This multinational study has provided a version of the EQ-5D-Y with 5 severity levels in each dimension. This extended version (EQ-5D-Y-5L) requires testing its psychometric properties and its performance compared to that of the original EQ-5D-Y-3L.

Place, publisher, year, edition, pages
Springer, 2019. Vol. 28, no 7, p. 1951-1961
Keywords [en]
Adolescent, Children, EQ-5D-Y, EQ-5D-Y-3L, EQ-5D-Y-5L, Health-related quality of life (HRQoL)
National Category
Public Health, Global Health, Social Medicine and Epidemiology
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URN: urn:nbn:se:rkh:diva-2748DOI: 10.1007/s11136-019-02115-xPubMedID: 30739287OAI: oai:DiVA.org:rkh-2748DiVA, id: diva2:1291551
Available from: 2019-02-25 Created: 2019-02-25 Last updated: 2019-06-24Bibliographically approved

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Egmar, Ann-Charlotte

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