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Living with a well-known stranger: Voices of family members to older persons with frontotemporal dementia
Sophiahemmet University / Karolinska Institutet.
Sophiahemmet Univversity / Karolinska Institutet.
Univeristy in South Eastern Norway, Kongsberg, Norway.
Karolinska Institutet.
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2019 (English)In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, article id e12264Article in journal (Refereed) Epub ahead of print
Abstract [en]

Aim To describe family members' experiences of living with persons with neuropsychiatric symptoms (NPS) related to frontotemporal dementia (FTD). Background The majority of persons with dementia during the disease trajectory develop NPS. Persons with FTD are likely to develop greater levels of NPS than persons with other types of dementias. Research-based knowledge regarding family members' experiences of living with persons with FTD and NPS is limited. Methods Nine family members of persons with FTD were interviewed. Interviews commenced with completion of the Neuropsychiatric Inventory (NPI). Upon completion of the NPI, questions were posed from an interview guide where study participants provided in-depth information about NPS identified. Interview data were analysed using qualitative content analysis. Results Interviewed family members highlighted that persons with FTD had developed between four and eight co-existing NPS. Irritability and disinhibition were the most common NPS, with variations in severity, frequency and distress. From the interview data, two themes emerged: Living with a well-known stranger and Coping and overstepping social norms. Conclusions Living with a well-known stranger depicted a new co-existence with a loved one with changes in personality and behaviour, which were not inherent to the person or predictable any more. The presence of NPS can threaten the safety of the person with FTD and their family in real world and on social media. Support offered should focus on the person's physical and psychological needs, not on a diagnosis. Implications for practice From a health care perspective it is important to see the person with FTD and their family as unique individuals with specific needs.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019. article id e12264
Keywords [en]
content analysis, dementia, family
National Category
Nursing
Identifiers
URN: urn:nbn:se:rkh:diva-3054DOI: 10.1111/opn.12264PubMedID: 31577392OAI: oai:DiVA.org:rkh-3054DiVA, id: diva2:1367471
Available from: 2019-11-04 Created: 2019-11-04 Last updated: 2019-11-04Bibliographically approved

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