Background: Fertile women that are about to undergo cancer treatment do not receive adequate information about fertility and fertility preservation. Not to have been able to make an active choice about undergoing fertility preservation may cause a suffering for these women. Purpose: To describe which experiences young women with cancer have of the information given about fertility and fertility preservation measures prior to the cancer treatment with regards to disease-suffering, care-suffering and life-suffering. Method: Literature review of qualitative and quantitative research. Results: Eight subcategories based on the three main categories disease-suffering, care-suffering and life-suffering were identified. Disease-suffering: (1) Anxiety and (2) Uncertainty. Care-suffering: (3) Attitudes and (4) Lack of information. Life-suffering: (5) Relations and Other social factors, (6) Psychological illness, (7) Longing for children and (8) Quality of life. Conclusion: Various measures are needed to ensure women’s right to information about fertility prior to cancer treatment in order to diminish disease-suffering, care-suffering and life-suffering. Caregivers need to talk with women about fertility related problems, both preventively and for healing purposes. Clinical significance: A clear and safer information policy is needed on fertility and fertility preservation for patients about to undergo cancer treatment.