Background: Endometriosis is a gynecological disease caused by endometrium, or cells similar to the endometrium, that grows outside the uterus and creates a chronic inflammation. The most commonly reported symptoms are dysmenorrhoea, dyspareunia, severe or irregular bleedings and pelvic pain. The underlying cause of the disease is not yet established and 5,726,6% of women in fertile age are estimated to be affected. Health care professionals has an important role in nursing care, as it might affect quality of life in women with endometriosis. Purpose: The aim of the study is to describe women's experiences of living with endometriosis. Method: Literature study based on an analysis of 18 scientific articles with qualitative and quantitative content. Results: Four main themes are represented in the result; Experiences of health care, Physical consequences, Mental pain and Endometriosis controls women’s social lives. Conclusion: The literature study shows that endometriosis has a major impact on women's lives, which affects relationships, life opportunities and quality of life. The majority have experienced negative meetings with health care and a lack of knowledge. This leads to a long wait for diagnosis and insufficient treatment options. Further research should focus on results-oriented treatments and symptomatic therapies for endometriosis patients. Studies should also include transgender patients and patients that has undergone gender reassignment surgery, that is seeking health care for endometriosis-related symptoms.