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Närståendes delaktighet i palliativ hemsjukvård: En litteraturstudie
Swedish Red Cross University.
Swedish Red Cross University.
2022 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Significant others participation in palliative home care : A literature study (English)
Abstract [sv]

Bakgrund: I och med en åldrande befolkning behöver palliativ hemsjukvård utvecklas och närståendes roll bli mer central. Närstående deltar i den palliativa hemsjukvården genom att stödja personen under hela vårdförloppet och bidrar till ökat välbefinnande för personen under livets slutfas.

Syftet: Syftet med denna studie var att beskriva närståendes erfarenheter av delaktighet i palliativ hemsjukvård.

Metod: En litteraturstudie med kvalitativ ansats som följer Polit och Becks niostegsmodell samt Braun och Clarks tematiska analys. Material hämtades från databaserna CINAHL samt PubMed.

Resultat: Resultatet redovisar tre teman: förståelse och delaktighet, delaktighetens utmaningar samt närvaro i samband med döden.

Slutsats: Närståendes erfarenheter av delaktighet inom palliativ hemsjukvård påverkas av flertalet faktorer, i synnerhet personens tillstånd, närståendes förkunskap och självkänsla samt stöd från professionella. Bristande kunskap medför emotionell stress och oro för närstående. Genom att beskriva närståendes erfarenheter kan förståelsen för deras fysiska, psykiska, och emotionella behov öka. Förståelsen är central för att kunna erbjuda lämpligt stöd och öka vårdkvaliteten.

Abstract [en]

Background: With an aging population, palliative home care needs to be developed and the role of significant others become more central. Significant others participate in the palliative home health care by supporting the person throughout the care process and contribute to increased well-being for the person during the final phase of life.

Aim: The aim of this study was to describe significant others experiences of participation in palliative home care.

Method: A literature study with a qualitative approach that follows Polit and Beck's nine-step model and Braun and Clark's thematic analysis. Material was retrieved from the databases CINAHL and PubMed.

Results: The result presents three themes: understanding and participation, the challenges of participation and presence in connection with death. 

Conclusion: Significant others experiences of participation in palliative home care are influenced by several factors, the person's condition, significant others' prior knowledge and self-esteem, as well as support from professionals. Lack of knowledge causes emotional stress and anxiety for significant others. By describing the experiences of significant others', the understanding of their physical, mental, and emotional needs can increase. The understanding is central to being able to offer appropriate support and increase the quality of care.

Place, publisher, year, edition, pages
2022. , p. 45
Keywords [sv]
familjemedlemmar, familjevårdare, hemsjukvård, palliativ hemsjukvård
National Category
Nursing
Identifiers
URN: urn:nbn:se:rkh:diva-4228OAI: oai:DiVA.org:rkh-4228DiVA, id: diva2:1648725
Educational program
Undergraduate Nursing Program
Supervisors
Examiners
Available from: 2022-04-01 Created: 2022-03-31 Last updated: 2022-04-01Bibliographically approved

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CiteExportLink to record
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Citation style
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