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Quality Of Life in Children With Home Mechanical Ventilation – A Scoping Review
Swedish Red Cross University, Department of Health Sciences. Karolinska Institutet, Sweden. (TVV)ORCID iD: 0000-0002-4091-3432
Swedish Red Cross University.
Swedish Red Cross University.
Swedish Red Cross University, Department of Health Sciences.ORCID iD: 0000-0002-7295-7341
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2022 (English)In: Sage Open Nursing, E-ISSN 2377-9608, Vol. 8, p. 1-12Article, review/survey (Refereed) Published
Abstract [en]

Introduction: Home mechanical ventilation is an established method to support children suffering from chronic respiratory insufficiency, still more research is needed regarding mechanically ventilated children’s and adolescents’ quality of life (QoL). Therefore, the aim of this scoping review was to explore research regarding QoL and lived experience of children and adolescents with home mechanical ventilation. 

Methods: A scoping review with systematic searches for research studies published between year 2000–2020 was performed in Cinahl, Medline, and PubMed. Studies that met the inclusion criteria were quality assessed and a thematic analysis was performed.

Results: In total, ten articles were quality assessed and included in the results. Four themes emerged: Children’s self-reported QoL, Parents’ perception and parent-proxy report, Differences between the child’s and parent’s perception, and challenges in daily life. Children with home mechanical ventilation reported a lower QoL than healthy children and children with other chronic diseases. Generally, parents rate their child’s QoL lower than the children themselves.

Conclusion: This is the first literature review focusing on HMV in the paediatric population. It is clear that HMV does not only affect the treated child or adolescent but also the whole family. It is important to regularly measure and evaluate QoL in children and adolescents with

Place, publisher, year, edition, pages
Sage Publications, 2022. Vol. 8, p. 1-12
Keywords [en]
adolescents and children, home mechanical ventilation, parent-proxy, quality of life, respiratory insufficiency
National Category
Nursing
Identifiers
URN: urn:nbn:se:rkh:diva-4252DOI: 10.1177/23779608221094522OAI: oai:DiVA.org:rkh-4252DiVA, id: diva2:1654515
Available from: 2022-04-27 Created: 2022-04-27 Last updated: 2022-12-12Bibliographically approved

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Mattsson, JanetScheers Andersson, ElinaBjörling, Gunilla

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