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Including a discussion forum in a web-based intervention on fertility and sexuality following cancer - Usage and content
Swedish Red Cross University, Department of Health Sciences. Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.ORCID iD: 0000-0002-5837-8263
Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden; Centre for Clinical Research Sörmland, Uppsala University, Eskilstuna, Sweden.
Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden; Department of Psychology, Umeå University, Umeå, Sweden; Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.
Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden; Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.
2022 (English)In: Internet interventions, ISSN 2214-7829, Vol. 29, article id 100559Article in journal (Refereed) Published
Abstract [en]

Aim: The aim of the study was to investigate how young adult survivors of childhood cancer used an online discussion forum as part of a web-based psycho-educational intervention. Specifically, we aimed to characterize users of the discussion forum, investigate how they used the discussion forum (type of usage) and content of the posted messages.

Methods: This study is a part of a randomized controlled trial, Fex-Can Childhood RCT. Participants with self-reported sexual dysfunction or fertility-related distress were drawn from a population-based national cohort. Sociodemographic and clinical characteristics of the intervention group (n = 322) and data on usage of the discussion forum were analysed with descriptive statistics and compared between subgroups. Messages posted in the online discussion forum were analysed with qualitative thematic analysis.

Results: Approximately half (48 %) of participants in the intervention group accessed the discussion forum and most of them (76 %) without writing own posts. Users of the discussion forum did not statistically differ in sociodemographic or clinical characteristics from the rest of the intervention group. The 97 written posts, written by 38 individuals, were mainly descriptions of own experiences and thoughts and concerned three themes: A changed body, Concerns around family building and Longing for support. Peer-support and interaction between participants were seen in some forum threads and the 'like'-function was frequently used, demonstrating engagement and activity. Participants expressed that they felt affinity with and appreciated sharing own experiences and to recognize themselves in others' stories.

Conclusions: A discussion forum as part of a web-based intervention appears to be a valuable component by giving participants an opportunity to share intimate experiences and concerns related to surviving cancer.

Place, publisher, year, edition, pages
Elsevier, 2022. Vol. 29, article id 100559
Keywords [en]
Childhood cancer survivors, Communication, Fertility, Online discussion forum, Sexuality, Social support
National Category
Nursing Cancer and Oncology Obstetrics, Gynecology and Reproductive Medicine
Identifiers
URN: urn:nbn:se:rkh:diva-4361DOI: 10.1016/j.invent.2022.100559ISI: 000841809600007PubMedID: 35845087Scopus ID: 2-s2.0-85134570503OAI: oai:DiVA.org:rkh-4361DiVA, id: diva2:1684545
Funder
Swedish Cancer Society, CAN 2013/ 886Swedish Childhood Cancer Foundation, TJ2014-0050Swedish Childhood Cancer Foundation, TJ2019-0045Swedish Childhood Cancer Foundation, PR2014-0177Swedish Childhood Cancer Foundation, PR2016-0075Swedish Childhood Cancer Foundation, PR2017-003Forte, Swedish Research Council for Health, Working Life and Welfare, 2014- 4689Swedish Research Council, 2017-01530The Karolinska Institutet's Research Foundation, 2-5586/2017
Note

Trial registration: ISRCTN Registry, trial number: 33081791 (registered on November 27, 2019).

Available from: 2022-07-26 Created: 2022-07-26 Last updated: 2022-09-02Bibliographically approved

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Gottvall, Maria

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