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Living in uncertainty while a spouse is undergoing a cognitive assessment: Voices of women care partners
Sophiahemmet University, Sweden.ORCID iD: 0000-0003-0103-8994
Swedish Red Cross University, Department of Health Sciences. Karolinska Institutet, Sweden.ORCID iD: 0000-0003-0971-5283
Sophiahemmet University, Sweden; Karolinska Institutet, Sweden.ORCID iD: 0000-0001-6405-2326
2022 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 21, no 8, p. 2631-2646Article in journal (Refereed) Published
Abstract [en]

Introduction: Women often support partners with cognitive symptoms during the assessment process and when they are receiving a cognitive diagnosis. Living with a partner with cognitive symptoms can be stressful; however, there is limited insights into the specific experiences of older women during the assessment process. Previous research indicates that there are gender differences in the experiences of spousal caregiving; however, further research is needed in regard to the experiences of men and women as care partners. Therefore, the aim of the present study was to describe women’s experiences of living with a partner undergoing a cognitive assessment.

Methods: Semi-structured interviews were conducted with seven women when their male partners commenced a cognitive assessment and after the assessment had been completed. The interviews were analysed with abductive content analysis.

Findings: Uncertainty permeated the women’s experiences. Antecedents, attributes and strategies to manage the uncertainty were described.

Conclusion: The participants expressed informational and existential uncertainty when their partner underwent a cognitive assessment. A lack of knowledge regarding the assessment process and cognitive diagnoses, especially mild cognitive impairment, was identified. Further, there was a need to process existential uncertainty evoked by the situation.

Place, publisher, year, edition, pages
Sage Publications, 2022. Vol. 21, no 8, p. 2631-2646
National Category
Geriatrics
Identifiers
URN: urn:nbn:se:rkh:diva-4384DOI: 10.1177/14713012221128448PubMedID: 36131252OAI: oai:DiVA.org:rkh-4384DiVA, id: diva2:1699360
Available from: 2022-09-27 Created: 2022-09-27 Last updated: 2022-10-25Bibliographically approved

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Hillerås, Pernilla

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