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Voiding conditions, renal and bowel function in a cohort of adults with spina bifida
Rehab Station Stockholm, Sweden; Karolinska University Hospital, Sweden; Karolinska Institutet, Sweden.
Rehab Station Stockholm, Sweden.
Swedish Red Cross University, Department of Health Sciences. Rehab Station Stockholm, Sweden; Örebro University, Sweden.ORCID iD: 0000-0002-7813-3351
Rehab Station Stockholm, Sweden; Karolinska Institutet, Stockholm, Sweden.
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2020 (English)In: Neurourology and Urodynamics, ISSN 0733-2467, E-ISSN 1520-6777, Vol. 39, no 6, p. 1796-1802Article in journal (Refereed) Published
Abstract [en]

AIM: To map voiding patterns, degree of continence, use of drugs for voiding disorders, kidney function and surgical interventions but also the bowel function in a near-total regional cohort of adults with spina bifida aged more than or equal to 18 years.

METHODS: All individuals more than or equal to 18 years of age with spina bifida registered at a regional outpatient clinic (n = 219) were invited to participate, of which 196 persons were included. Bladder and bowel function were assessed according to questions used by the Nordic Spinal Cord Injury Registry by structured interviews and questionnaires in combination with review of patient charts including kidney function.

RESULTS: Twenty percent of the patients voided spontaneously. Fifty-four percent used clean intermittent catherization (CIC) and of these, 14% had also undergone augmentation of the bladder and/or implantation of an artificial sphincter or sling, 23% had undergone major urological surgery, and 3% had an indwelling catheter. Seventeen percent of patients voiding spontaneously or using CIC reported total continence but as many as 36% reported daily leakage. Anticholinergics was the most common drug, used by 21% in the total cohort. About 13% of the patients had a reduced kidney function but only 1.5% had end stage renal failure. Seventy-three percent had problems emptying the bowel and 18% experienced fecal leakage weekly or even daily.

CONCLUSION: We found a large variation in problems with bladder and bowel function in this adult group of persons with spina bifida. A structured customized program for follow-up seems necessary to optimize their health status in these areas.

Place, publisher, year, edition, pages
John Wiley & Sons, 2020. Vol. 39, no 6, p. 1796-1802
Keywords [en]
Constipation, fecal leakage, neurogenic bladder dysfunction, renal dysfunction, urinary incontinence
National Category
Nursing Neurology
Identifiers
URN: urn:nbn:se:rkh:diva-4563DOI: 10.1002/nau.24422PubMedID: 32531078OAI: oai:DiVA.org:rkh-4563DiVA, id: diva2:1747638
Note

Funding Agencies:

Caroline Montgomery Foundation  

Foundation of Linnea and Josef Carlsson  

Foundation of Neuro Sweden  

Norrbacka Eugenia Foundation 

Available from: 2020-06-16 Created: 2023-03-30Bibliographically approved

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Gabrielsson, Hanna

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