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Patients' goals related to health and function in the first 13 months after allogeneic stem cell transplantation
Red Cross University College of Nursing. Karolinska Institutet.
Red Cross University College of Nursing.ORCID iD: 0000-0003-0622-7794
Red Cross University College of Nursing.
Red Cross University College of Nursing.
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2012 (English)In: Supportive Care in Cancer, ISSN 0941-4355, E-ISSN 1433-7339, Vol. 20, no 9, p. 2025-2032Article in journal (Refereed) Published
Abstract [en]

Purpose: Patient participation in goal setting and decision making is a core component of the rehabilitation process, but there is little information on what patients want to achieve after allogeneic stem cell transplantation (allo-SCT). The aim of this study was to describe adult patients' perceptions of goals related to health and function, as well as self-perceived limitations and facilitating strategies in the first 13 months after allo-SCT. Methods: Fifteen patients with a median age of 44 years (range, 22-65 years) were interviewed on one occasion during the first year after allo-SCT. Data were analysed using qualitative content analysis. Results: Results showed that patients felt that time after allo-SCT largely concerned: "to be healthy" and "to participate in a normal life". Some patients felt it was easy to set goals while others found it difficult. Most described goals had a long-term character. Patients were faced with a wide variety of limitations of which a few did not link to a described goal. Several facilitating strategies were described that either had or could help patients to reach their goals. Conclusions: Our results indicate that assistance with setting achievable goals, including individualised strategies and support from health care professionals to realise the goals, may assist in the rehabilitation to restore health and function after allo-SCT.

Place, publisher, year, edition, pages
Berlin: Springer Berlin/Heidelberg, 2012. Vol. 20, no 9, p. 2025-2032
Keywords [en]
allogeneic stem cell transplantation, goal setting, rehabilitation, qualitative study
National Category
Nursing Cancer and Oncology
Identifiers
URN: urn:nbn:se:rkh:diva-393DOI: 10.1007/s00520-011-1310-xPubMedID: 22081115OAI: oai:DiVA.org:rkh-393DiVA, id: diva2:557356
Available from: 2012-09-27 Created: 2012-09-27 Last updated: 2017-12-07Bibliographically approved

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Larsen, Joacim

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