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Validation of a Disease-Specific Questionnaire for Measuring Parent-Reported Health-Related Quality of Life in Children with Allergies
Unit of Clinical Nursing Research and Research in Immunotherapy and Immunology, Section of Clinical Immunology at the Department of Laboratory Medicine, Karolinska Institutet at Karolinska University Hospital, Huddinge.
Department of Clinical Research and Education, Södersjukhuset, Karolinska Institutet, Stockholm.
Red Cross University College of Nursing.ORCID iD: 0000-0003-2504-343X
Department of Nursing, Faculty of Life and Social Sciences, Karlstad University, Karlstad.
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2012 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 26, no 4, p. 679-687Article in journal (Refereed) Published
Abstract [en]

Purpose: To evaluate the properties and suitability of a disease-specific questionnaire to assess parent-reported health-related quality of life (HRQL) of children and parents of children suffering from food hypersensitivity (FHS) or allergy to furred pets (AFP).

Methods: The parents of 202 children with FHS and of 131 children with AFP filled in questionnaires comprising the CHQ-PF28 and the Food-Pet-Allergy in Children (FPAC) Questionnaire. Psychometric properties of the FPAC questionnaire were evaluated separately for FHS and AFP.

Results: Analyses resulted in five proposed scales: Limitations of Family/Child Activities (I), Parents’ Distress (II), Child’s Emotions (III), Child in School (IV) and Family Conflicts (V). Convergent/discriminant validity for scales I, II and III of both questionnaires was high; for scale IV it was moderate. All five FHS and four AFP scales were able to distinguish significantly between children with and without clinical allergy symptoms (known-group validity). Internal consistency reliability was good for scales I, II and III, but poor for scale IV.

Conclusion: Three valid scales were determined for both FHS and AFP (Limitations of Family/Child Activities, Parents’ Distress and Child’s Emotions) and can be used in clinical research.

Place, publisher, year, edition, pages
Oxford: Wiley-Blackwell, 2012. Vol. 26, no 4, p. 679-687
Keywords [en]
quality of life, childhood, furred pet allergy, food hypersensitivity
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Nursing
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URN: urn:nbn:se:rkh:diva-439DOI: 10.1111/j.1471-6712.2012.00980.xPubMedID: 22420368OAI: oai:DiVA.org:rkh-439DiVA, id: diva2:560937
Available from: 2012-10-16 Created: 2012-10-16 Last updated: 2017-12-07Bibliographically approved

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Egmar, Ann-Charlotte

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