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Development of the EQ-5D-Y: a child-friendly version of the EQ-5D
Department of Psychosomatics in Children and Adolescents, Research Unit Child Public Health, University Medical Center Hamburg-Eppendorf, Martinistr. 52, 20246, Hamburg, Germany.
Health Economics & Outcomes Research, IMS Health, Doctor Ferran 25-27, 2, 08034, Barcelona, Spain.
Department of Prenatal Medicine and Obstetrics (Location Woudenstein, L3-060), Erasmus Medical Centre, Institute of Health Policy & Management, P.O. Box 1738, 3000 DR, Rotterdam, The Netherlands.
Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Nobels väg 15a, 171 77, Stockholm, Sweden.
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2010 (English)In: Quality of Life Research, ISSN 0962-9343, E-ISSN 1573-2649, Vol. 19, no 6, 875-886 p.Article in journal (Refereed) Published
Abstract [en]

Purpose

To develop a self-report version of the EQ-5D for younger respondents, named the EQ-5D-Y (Youth); to test its comprehensibility for children and adolescents and to compare results obtained using the standard adult EQ-5D and the EQ-5D-Y.

Methods

An international task force revised the content of EQ-5D and wording to ensure relevance and clarity for young respondents. Children’s and adolescents’ understanding of the EQ-5D-Y was tested in cognitive interviews after the instrument was translated into German, Italian, Spanish and Swedish. Differences between the EQ-5D and the EQ-5D-Y regarding frequencies of reported problems were investigated in Germany, Spain and South Africa.

Results

The content of the EQ-5D dimensions proved to be appropriate for the measurement of HRQOL in young respondents. The wording of the questionnaire had to be adapted which led to small changes in the meaning of some items and answer options. The adapted EQ-5D-Y was satisfactorily understood by children and adolescents in different countries. It was better accepted and proved more feasible than the EQ-5D. The administration of the EQ-5D and of the EQ-5D-Y causes differences in frequencies of reported problems.

Conclusions

The newly developed EQ-5D-Y is a useful tool to measure HRQOL in young people in an age-appropriate manner.

Place, publisher, year, edition, pages
Springer, 2010. Vol. 19, no 6, 875-886 p.
Keyword [en]
child health, adolescent health, HRQOL, measurement, EQ-5D
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:rkh:diva-524DOI: 10.1007/s11136-010-9648-yOAI: oai:DiVA.org:rkh-524DiVA: diva2:607563
Available from: 2013-02-25 Created: 2013-02-25 Last updated: 2017-12-06Bibliographically approved

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Egmar, Ann-Charlotte

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