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Jag ska dö!: Hur patienter med obotlig cancer upplever bemötande i den palliativa vården
The Swedish Red Cross University College.
The Swedish Red Cross University College.
2013 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
I´m going to die! : How patients with incurable cancer experiencing encounter in palliative care (English)
Abstract [sv]

Bakgrund: Cancer är idag en av de stora folksjukdomarna och den vanligaste dödsorsaken bland personer upp till 80 års ålder. Fler människor lever allt längre med diagnosticerad cancer men hälften av dem som drabbas blir inte botade. När bot inte längre är möjligt flyttas vårdens fokus till palliativ vård. Forskning visar att det finns stora brister inom den palliativa vård som bedrivs i Sverige. Patienter med obotlig cancer utgör en stor grupp i vården och deras upplevelser av bemötande i den palliativa vården är av stor vikt. Trots detta saknas kunskap om patienters upplevelse av bemötande inom den palliativa vården. Syfte: Studien syftar till att belysa hur patienter med obotlig cancer upplever bemötande i den palliativa vården. Metod: Studien grundar sig på en kvalitativ innehållsanalys med induktiv ansats. Data samlades in från fyra bloggar, skrivna av personer med obotlig cancer. Resultat: Bloggförfattarnas upplevelser av bemötande kunde kategoriseras utifrån positiva samt negativa upplevelser av bemötande; Lyhördhet och empati, Delaktighet, Vårdpersonalens kompetens, Maktmissbruk och Förlorat förtroende. Slutsats: När patienter med obotlig cancer bemöts med empati av lyhörd och kompetent personal som tillåter patienten vara delaktig i sin behandling skapas positiva känslor och ett minskat lidande för patienten. När vårdpersonal missbrukar sin makt genom undanhållande av information, nonchalant och/eller respektlöst bemötande skapas känslor av förlorat förtroende, vilket leder till ett vårdlidande för patienten, ett lidande som kunnat undvikas. Klinisk betydelse: Studiens resultat kan ge sjuksköterskor djupare förståelse för patienters upplevelse av bemötande inom den palliativa vården. Kunskapen kan användas för att förbättra kvalitén på bemötande inom denna vårdform.

Abstract [en]

Background: Cancer is today one of the big endemic diseases and the most common cause of death amongst people up to 80 years. More people live longer with diagnosed cancer. But half of them are not cured. When there is no possibility of curing the patient, focus will be on palliative care. Research shows that there are large deficiencies in the palliative care that is conducted in Sweden. Patients with incurable cancer represent a large group and their experiences of encounter within the palliative care are of great importance. Despite this there is a lack of knowledge regarding the patient’s experiences of encounter within the palliative care. Aim: The study aims to enlighten how patients with incurable cancer experience their encounter in the palliative care. Method: The study is based upon a qualitative content analysis with an inductive approach. Data has been collected from four blogs written by people with incurable cancer. Results: The blog author’s experiences of encounter could be categorized by positive and negative experiences of encounter: Responsiveness and empathy, Participation, the Competence of healthcare personnel, Abuse of power and Loss of confidence. Conclusion: When patients with incurable cancer were treated with empathic, responsive and competent personnel who allowed patients to participate in their encounter, positive experiences were thereby felt by the patients, thus reducing their feeling of suffering. When the patients perceived that healthcare personnel abused their power through withholding information, nonchalant and/or disrespectful encounter, it created loss of confidence, thus leading to an increased experience of suffering by the patients, a suffering that could have been avoided. Clinical significance: The result of the study can give nurses a deeper understanding of a patients experience of encounter within the palliative care. The knowledge can be used to improve the quality of encounter within this type of care.

Place, publisher, year, edition, pages
2013. , 30 p.
Keyword [en]
incurable, cancer, care, blog, palliative care
Keyword [sv]
obotlig, cancer, vård, blogg, palliativ vård
National Category
Nursing
Identifiers
URN: urn:nbn:se:rkh:diva-729OAI: oai:DiVA.org:rkh-729DiVA: diva2:664968
Educational program
Sjuksköterskeprogrammet
Uppsok
Medicine
Available from: 2013-11-18 Created: 2013-11-18 Last updated: 2015-07-20Bibliographically approved

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