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Att leva med fibromyalgi: en litteraturstudie
Red Cross University College of Nursing.
Red Cross University College of Nursing.
2014 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Living with fibromyalgia : a litterature review (English)
Abstract [sv]

Bakgrund: Fibromyalgi är en muskelsjukdom med oklar etiologi som definieras av smärta med hög intensitet och lång duration. Symtom vid fibromyalgi karaktäriseras av smärta och fatigue.  Många individer upplever att sjukvården och samhället inte har tillräcklig kunskap och förståelse kring sjukdomen leder det till negativa upplevelser för den drabbade. Syfte: Att beskriva hur upplevelsen av fibromyalgi påverkar individens liv och dennes familj. Metod: En systematisk litteraturstudie innehållande 10 artiklar med kvalitativ ansats som valdes ut och analyserades. Resultat: I resultatet framkom två huvudkategorier: Det dagliga livet och Mötet med vården. Åtta subkategorier presenterades; familjeliv, påverkan på det sociala livet, påverkan på arbetslivet, behov av planering, fatigue, upplevelsen av smärta och att inte bli trodd, positiva erfarenheter av vården samt negativa erfarenheter av vården. Kategorierna beskriver olika aspekter av att leva med fibromyalgi. Slutsats: Fibromyalgi har till stor del en negativ inverkan på det dagliga livet för individen och dennes familj. Familjelivet, det sociala livet och arbetet var aspekter som påverkades negativt av sjukdomen både utifrån individens och familjens upplevelser. Studien belyser även patienternas positiva och negativa upplevelser av sjukvården. Klinisk betydelse: Kategorierna som presenteras i resultatet kan leda till ökad kunskap och förståelse dock behövs mer forskning baserat på omvårdnadsbehov kring patienter med fibromyalgi för att kunna förbättra omvårdnaden. 

Abstract [en]

Background: Fibromyalgia is a muscle disease with an unclear etiology which is defined as pain with high intensity and long duration. The symptoms that characterize fibromyalgia are pain and fatigue. The knowledge and the understanding about the disease is perceived as low within health care and society according to the individual´s, this leads to negative effects on the patient’s life. Aim: To describe the experiences that fibromyalgia has on the individual life and the family. Method: A systematic literature review based on 10 articles was chosen and analyzed with a qualitative approach. Result: In the result two main categories emerged, effects on the daily life and health care experiences. Eight subcategories were presented; family life, effects on the social life, effects on working life, need to plan ahead, fatigue, experience of pain and not being trustedpositive experiences and negative experiences. The categories described different aspects of living with fibromyalgia. Conclusion: Fibromyalgia has a negative impact on the daily life of the individual and the family. The family life, the social life and work life were aspects that were negative influenced by the disease based on experiences from both the individuals and the families. The study also described the patient’s experiences from the health care. Clinical significance: The result that were presented can hopefully lead to further research on fibromyalgia as well as increase knowledge among health care personal and improve the nursing care.

Place, publisher, year, edition, pages
2014. , p. 42
Keywords [en]
fibromyalgia, experiences, pain
Keywords [sv]
fibromyalgi, upplevelser, smärta
National Category
Nursing
Identifiers
URN: urn:nbn:se:rkh:diva-831OAI: oai:DiVA.org:rkh-831DiVA, id: diva2:716975
Educational program
Sjuksköterskeprogrammet
Uppsok
Medicine
Available from: 2014-05-13 Created: 2014-05-13 Last updated: 2014-05-13Bibliographically approved

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