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Meaning of caring in pediatric intensive care unit from the perspective of parents: A qualitative study
Karolinska Institutet, Sweden.ORCID iD: 0000-0002-4091-3432
Karolinska Institutet, Sweden.
Karolinska Institutet, Sweden.
Högskolan Dalarna, Omvårdnad.
2014 (English)In: Journal of Child Health Care, ISSN 1367-4935, E-ISSN 1741-2889, Vol. 18, no 4, 336-345 p.Article in journal (Refereed) Published
Abstract [en]

When children are critically ill, parents still strive to be present and participate in the care of their child. Pediatric intensive care differs from other realms of pediatric care as the nature of care is technically advanced and rather obstructing than encouraging parental involvement or closeness, either physically or emotionally, with the critically ill child. The aim of this study was to elucidate the meaning of caring in the pediatric intensive care unit from the perspective of parents. The design of this study followed Benner's interpretive phenomenological method. Eleven parents of seven children participated in observations and interviews. The following aspects of caring were illustrated in the themes arising from the findings: being a bridge to the child on the edge, building a sheltered atmosphere, meeting the child's needs, and adapting the environment for family life. The overall impression is that the phenomenon of caring is experienced exclusively when it is directed toward the exposed child. The conclusion drawn is that caring is present when providing expert physical care combined with fulfilling emotional needs and supporting continuing daily parental care for the child in an inviting environment.

Place, publisher, year, edition, pages
Sage Publications, 2014. Vol. 18, no 4, 336-345 p.
National Category
Nursing Anesthesiology and Intensive Care
Identifiers
URN: urn:nbn:se:rkh:diva-948DOI: 10.1177/1367493513496667PubMedID: 23939721OAI: oai:DiVA.org:rkh-948DiVA: diva2:741562
Note

As manuscript in dissertation

Available from: 2013-12-09 Created: 2014-08-28 Last updated: 2015-01-28Bibliographically approved
In thesis
1. Uncovering pain and caring for children in the pediatric intensive care unit: nurses’ clinical approach and parent’s perspective
Open this publication in new window or tab >>Uncovering pain and caring for children in the pediatric intensive care unit: nurses’ clinical approach and parent’s perspective
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Background: The thesis has a standpoint in a synthesis of caring science and educationscience from a clinical perspective. Children in a Pediatric Intensive Care Unit (PICU) are in an exposed position, dependent on nurses to acknowledge their needs. The alleviation of children’s pain has been investigated from various perspectives, but undertreated pain remains a problem in the PICU. There is a preponderance of empirical evidence pointing toward the role of nurses in uncovering children’s pain and suffering. How nurses interpret the child’s expressions and judge the clinical situation influences their actions in the clinical care. In a PICU, the basis for nurses’ concerns and interpretation of what is meaningful in the nursing care situation are formed by professional concern, workplace culture, traditions, habits, and workplace structures. This influences how parents interpret the meaning of care as well. Patricia Benner’s theory on clinical judgment forms a reference framework for this thesis. The assumption is that children need to be approached from a holistic perspective in the caring situation in order to acknowledge their caring needs. A nurse’s clinical education and insights allow for the possibility to enhance the quality of care for children and parents in the PICU.

Aim: To uncover clinical concerns, from caring and learning perspectives, in caring for children in the Pediatric Intensive Care Unit (PICU) from nurses and parents perspective.

Methods: Qualitative methods were used in all studies to unfold and explore the phenomena in the nurses’ and parents’ everyday clinical life world. In Papers I and II, a phenomenographic method was adopted. In Papers III and IV, an interpretive phenomenological approach was adopted.

Findings: Nurses that have a holistic view of the child and approach the child from a multidimensional perspective, with a focus on the individual child and his/her caring needs, develop a clinical “connoisseurship” and meet the parents’ expectations of the meaning of care. The nurses express that it is only when they focus on the child that subtle signs of pain are revealed. The meaning of nursing care, in the ideal case, is a holistic care where all aspects are integrated and the child as a person has first priority.

Conclusion: The meaning of caring and children’s needs must become elucidated to improve the cultural influence of what can be seen as good nursing care within the PICU.

Place, publisher, year, edition, pages
Karolinska Institutet, 2013. 49 p.
Keyword
Nursing care, clinical judgment, pain, non-verbal children, PICU, caring culture, parental perspectives
National Category
Nursing Anesthesiology and Intensive Care
Identifiers
urn:nbn:se:rkh:diva-1012 (URN)978-91-7457-977-2 (ISBN)
Public defence
2013-01-18, Ihre, Stockholm, 13:00 (English)
Opponent
Supervisors
Available from: 2014-09-09 Created: 2014-09-09 Last updated: 2014-12-11Bibliographically approved

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