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Uncovering pain in critically ill non-verbal children: Nurses' clinical experiences in the paediatric intensive care unit
Department of Clinical Science and Education, Karolinska Institute.ORCID iD: 0000-0002-4091-3432
Högskolan Dalarna, Omvårdnad.
Department of Neurobiology, Care Science and Society, Division of Nursing, Karolinska Institute.
2011 (English)In: Journal of Child Health Care, ISSN 1367-4935, E-ISSN 1741-2889, Vol. 15, no 3, p. 187-198Article in journal (Refereed) Published
Abstract [en]

Critically ill paediatric patients are frequently exposed to pain that is required to be assessed and treated effectively. The most reliable resource for assessing pain is the child itself, but children in the paediatric intensive care unit (PICU) are commonly unable to communicate their needs, requiring professional caregivers to uncover and interpret pain. However, nurses and paediatricians do not have sufficient knowledge of how critical illness affects childrens' signs of pain. The aim of this study was to illuminate clinical experiences of pain in the PICU; describing nurses' perceptions of expressions of pain in non-verbal, critically ill 2-6 year old children. The participants were 17 experienced PICU nurses. Data were analysed according to the phenomenographic method and three qualitatively different main categories, gained from clinical experience, emerged: changes in the measurable parameters; perceived muscular tension; and, altered behaviour. Furthermore, contrasting the categories revealed two diverse perspectives to focus pain: measure-oriented and patient-oriented. Subtle expressions of pain were recognised when focus was patient-oriented. These findings support the necessity of actively looking for pain deriving from various perspectives and considering diverse caring needs when doing so. Acknowledging pain makes pain visible.

Place, publisher, year, edition, pages
Sage Publications, 2011. Vol. 15, no 3, p. 187-198
Keywords [en]
Experiential knowledge; Intensive care; Non-verbal; Nurse-child interaction; Paediatric; Pain; PICU; Qualitative approaches
National Category
Nursing Anesthesiology and Intensive Care
Identifiers
URN: urn:nbn:se:rkh:diva-947DOI: 10.1177/1367493511406566PubMedID: 21828165OAI: oai:DiVA.org:rkh-947DiVA, id: diva2:741580
Available from: 2012-08-03 Created: 2014-08-28 Last updated: 2017-12-05Bibliographically approved
In thesis
1. Uncovering pain and caring for children in the pediatric intensive care unit: nurses’ clinical approach and parent’s perspective
Open this publication in new window or tab >>Uncovering pain and caring for children in the pediatric intensive care unit: nurses’ clinical approach and parent’s perspective
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Background: The thesis has a standpoint in a synthesis of caring science and educationscience from a clinical perspective. Children in a Pediatric Intensive Care Unit (PICU) are in an exposed position, dependent on nurses to acknowledge their needs. The alleviation of children’s pain has been investigated from various perspectives, but undertreated pain remains a problem in the PICU. There is a preponderance of empirical evidence pointing toward the role of nurses in uncovering children’s pain and suffering. How nurses interpret the child’s expressions and judge the clinical situation influences their actions in the clinical care. In a PICU, the basis for nurses’ concerns and interpretation of what is meaningful in the nursing care situation are formed by professional concern, workplace culture, traditions, habits, and workplace structures. This influences how parents interpret the meaning of care as well. Patricia Benner’s theory on clinical judgment forms a reference framework for this thesis. The assumption is that children need to be approached from a holistic perspective in the caring situation in order to acknowledge their caring needs. A nurse’s clinical education and insights allow for the possibility to enhance the quality of care for children and parents in the PICU.

Aim: To uncover clinical concerns, from caring and learning perspectives, in caring for children in the Pediatric Intensive Care Unit (PICU) from nurses and parents perspective.

Methods: Qualitative methods were used in all studies to unfold and explore the phenomena in the nurses’ and parents’ everyday clinical life world. In Papers I and II, a phenomenographic method was adopted. In Papers III and IV, an interpretive phenomenological approach was adopted.

Findings: Nurses that have a holistic view of the child and approach the child from a multidimensional perspective, with a focus on the individual child and his/her caring needs, develop a clinical “connoisseurship” and meet the parents’ expectations of the meaning of care. The nurses express that it is only when they focus on the child that subtle signs of pain are revealed. The meaning of nursing care, in the ideal case, is a holistic care where all aspects are integrated and the child as a person has first priority.

Conclusion: The meaning of caring and children’s needs must become elucidated to improve the cultural influence of what can be seen as good nursing care within the PICU.

Place, publisher, year, edition, pages
Karolinska Institutet, 2013. p. 49
Keywords
Nursing care, clinical judgment, pain, non-verbal children, PICU, caring culture, parental perspectives
National Category
Nursing Anesthesiology and Intensive Care
Identifiers
urn:nbn:se:rkh:diva-1012 (URN)978-91-7457-977-2 (ISBN)
Public defence
2013-01-18, Ihre, Stockholm, 13:00 (English)
Opponent
Supervisors
Available from: 2014-09-09 Created: 2014-09-09 Last updated: 2014-12-11Bibliographically approved

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Mattsson, Janet Yvonne

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