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  • 1.
    Andersson, Ann-Christine
    et al.
    Division of Quality Technology and Management, Linköping University, Linköping.
    Elg, Mattias
    Division of Quality Technology and Management and HELIX Vinn Excellence Centre, Linköping University, Linköping.
    Perseius, Kent-Inge
    Nyckeln competence centre for pedagogy in health care, Kalmar County Council, Kalmar.
    Idwall, Ewa
    Faculty of Health and Society, Malmö University, Malmö.
    Evaluating a questionnaire to measure improvement initiatives in Swedish healthcare2013In: BMC Health Services Research, ISSN 1472-6963, E-ISSN 1472-6963, Vol. 13, p. 48-Article in journal (Refereed)
    Abstract [en]

    BACKGROUND:

    Quality improvement initiatives have expanded recently within the healthcare sector. Studies have shown that less than 40% of these initiatives are successful, indicating the need for an instrument that can measure the progress and results of quality improvement initiatives and answer questions about how quality initiatives are conducted. The aim of the present study was to develop and test an instrument to measure improvement process and outcome in Swedish healthcare.

    METHODS:

    A questionnaire, founded on the Minnesota Innovation Survey (MIS), was developed in several steps. Items were merged and answer alternatives were revised. Employees participating in a county council improvement program received the web-based questionnaire. Data was analysed by descriptive statistics and correlation analysis. The questionnaire psychometric properties were investigated and an exploratory factor analysis was conducted.

    RESULTS:

    The Swedish Improvement Measurement Questionnaire consists of 27 items. The Improvement Effectiveness Outcome dimension consists of three items and has a Cronbach's alpha coefficient of 0.67. The Internal Improvement Processes dimension consists of eight sub-dimensions with a total of 24 items. Cronbach's alpha coefficient for the complete dimension was 0.72. Three significant item correlations were found. A large involvement in the improvement initiative was shown and the majority of the respondents were satisfied with their work.

    CONCLUSIONS:

    The psychometric property tests suggest initial support for the questionnaire to study and evaluate quality improvement initiatives in Swedish healthcare settings. The overall satisfaction with the quality improvement initiative correlates positively to the awareness of individual responsibilities.

  • 2.
    Andersson, Ann-Christine
    et al.
    Linköpings universitet, Institutionen för ekonomisk och industriell utveckling.
    Idvall, Ewa
    Malmö University.
    Perseius, Kent-Inge
    Kalmar County Council.
    Elg, Mattias
    Linköpings universitet, Institutionen för ekonomisk och industriell utveckling, Kvalitetsteknik.
    Sustainable Outcomes of an Improvement Program: Do Financial Incentives Matter?2013In: Total Quality Management and Business Excellence, ISSN 1478-3363, E-ISSN 1478-3371, Vol. 24, no 7-8, p. 959-969Article in journal (Refereed)
    Abstract [en]

    The purpose of this study was to evaluate whether an improvement programme can contribute to positive sustainable improvements in an organisation, and whether financial incentives are driving forces for improvements. The material was all projects (n=232) that applied for funding in a county council improvement programme between 2007 and 2010. The projects were analysed as to whether they received funding (n=98) or were rejected (n=95). In addition, a categorisation of the projects' intentions was analysed. Some projects were still ongoing, but 50 projects were implemented and sustained two or more years after being finalised. Implemented improvements were on different levels, from (micro-level) units up to the entire (macro-level) organisation. In addition, 27 rejected projects were finalised without funding. Eighteen of those 27 were sustainably implemented. This study indicates that there are incentives other than financial at work if an improvement programme contributes to sustainable improvements in the organisation. To encourage practice-based improvements is one way of incentivising the intention and effort to become and perform better.

  • 3.
    Andersson, Ann-Christine
    et al.
    The Jönköping Academy for Improvements of Health and Welfare, School of Health Sciences, Jönköping University, Sweden .
    Idvall, Ewa
    Department of Care Science, Faculty of Health and Society, Malmö University and Department of Intensive Care and Perioperative Medicine, Skåne University Hospital, Malmö, Sweden.
    Perseius, Kent-Inge
    The Swedish Red Cross University College. Nyckeln Competence Centre for Pedagogy in Health Care, Kalmar County Council.
    Elg, Mattias
    Division of Quality Technology and Management and HELIX Vinn Excellence Centre, Linköping University, Sweden.
    Two Different Strategies to Facilitate Involvement in Healthcare Improvements: A Swedish County Council Initiative2014In: Global Advances in Health and Medicine, ISSN 2164-957X, E-ISSN 2164-9561, Vol. 3, no 5, p. 22-28Article in journal (Refereed)
    Abstract [en]

    Background: From a management point of view, there are many different approaches from which to choose to engage staff members in initiatives to improve performance.

    Objective: The present study evaluated how two different types of improvement strategies facilitate and encourage involvement of different professional groups in health-care organizations.

    Methods/Design: Empirical data of two different types of strategies were collected within an improvement project in a County Council in Sweden. The data analysis was carried out through classifying the participants' profession, position, gender, and the organizational administration of which they were a part, in relation to their participation.

    Setting: An improvement project in a County Council in Sweden.

    Participants: Designed Improvement Processes consisted of n=105 teams and Intrapreneurship Projects of n=202 projects.

    Intervention: Two different types of improvement strategies, Designed Improvement Processes and Intrapreneurship Projects.

    Main Outcome Measures: How two different types of improvement strategies facilitate and encourage involvement of different professional groups in healthcare organizations.

    Results: Nurses were the largest group participating in both improvement initiatives. Physicians were also well represented, although they seemed to prefer the less structured Intrapreneurship Projects approach. Assistant nurses, being the second largest staff group, were poorly represented in both initiatives. This indicates that the benefits and support for one group may push another group aside.

    Conclusions: Managers need to give prerequisites and incentives for staff who do not participate in improvements to do so. Comparisons of different types of improvement initiatives are an underused research strategy that yields interesting and thoughtful results.

  • 4.
    Ardalan, A.
    et al.
    Department of Health in Emergencies and Disasters, National Institute of Health Research, Tehran University of Medical Sciences, Tehran, Iran; Disaster Public Health Department, School of Public Health, Tehran University of Medical Sciences, Tehran, Iran..
    Mazaheri, Monir
    Department of Neurobiology, Care Sciences and Society, Karolinska Institutet;Faculty of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran.
    Vanrooyen, M.
    Harvard Humanitarian Initiative, Harvard University, Cambridge, Massachusetts, USA.
    Mowafi, H.
    Harvard Humanitarian Initiative, Harvard University, Cambridge, Massachusetts, USA; Department of Emergency Medicine, Boston University, Cambridge, Massachusetts, USA.
    Nedjat, S.
    Department of Biostatistics and Epidemiology, Knowledge Utilization Research Centre, Tehran University of Medical Sciences, Tehran, Iran.
    Naieni, K. H.
    Department of Biostatistics and Epidemiology, Tehran University of Medical Sciences, Tehran, Iran.
    Russel, M.
    Iranian Research Centre on Ageing at the University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
    Post-disaster quality of life among older survivors five years after the Bam earthquake: implications for recovery policy2011In: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779, Vol. 31, no 2, p. 179-196Article in journal (Refereed)
    Abstract [en]

    Older people are among the most vulnerable in major disasters. In their aftermath, it is crucial to institute efforts that will maintain a high level of elders' quality of life (QoL). This paper presents QoL assessments of elderly survivors five years after the Bam earthquake in Iran, and evaluates the determinants. A cross-sectional analysis of 210 randomly-selected survivors was carried out in 2008 using the WHOQOL-BREF questionnaire. A comparison of the results with data on the general population showed that experiencing the earthquake may adversely affect psychological dimensions of QoL even five years after, but paradoxically the earthquake resulted in better social relationships in affected communities than in the general population. Lower QoL associated with female gender, higher age, living alone, severe earthquake-related injury, poor quality of living conditions, increased dependency in the activities of daily living, living in an urban area, and being temporarily housed. Recovery experts and donors should carry out long-term monitoring of health status and QoL in disaster-affected communities, with a focus on psychological wellbeing. Intervention programmes that emphasise post-disaster quality of care and satisfactory housing may lead to better QoL of the victims and may shorten the recovery phase.

  • 5.
    Ardalan, Ali
    et al.
    School of Public Health and Institute of Public Health Research, Tehran University of Medical Sciences, Tehran, Iran..
    Mazaheri, Monir
    Department of Neurobiology, Care Sciences and Society, Karolinska Institute; Faculty of Nursing and Midwifery, Tehran University of Medical Science, Tehran, Iran..
    Kourosh, Holakouie Naieni
    School of Public Health and Institute of Public Health Research, Tehran University of Medical Sciences, Tehran, Iran..
    Rezaie, Mohsen
    School of Public Health and Institute of Public Health Research, Tehran University of Medical Sciences, Tehran, Iran.
    Teimoori, Fariba
    Iranian Research Centre on Ageing, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
    Pourmalek, Farshad
    Iran University of Medical Sciences, Tehran, Iran.
    Older people´s needs following major disasters: a qualitative study of Iranian elders´ experiences of the Bam earthquake2010In: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779, Vol. 30, no 1, p. 11-23Article in journal (Refereed)
  • 6.
    Ardalan, Ali
    et al.
    Health in Emergencies and Disasters Department, National Institute of Health Research, Tehran University of Medical Sciences, Tehran, Iran; Disaster Public Health Department, School of Public Health, Tehran University of Medical Sciences, Tehran, Iran.
    Mazaheri, Monir
    Department of Neurobiology, Care Sciences and Society, Karolinska Institute; Faculty of Nursing and Midwifery, Tehran University of Medical Sciences, Iran.
    Mowafi, Hani
    Harvard Humanitarian Initiative, Harvard University, Boston, Massachusetts USA; Department of Emergency Medicine, Boston University, Boston, Massachusetts USA.
    VanRooyen, Michael
    Harvard Humanitarian Initiative, Harvard University, Boston, Massachusetts USA.
    Teimoori, Fariba
    Iranian Research Centre on Aging, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran; School of Medicine, Iran University of Medical Sciences, Tehran, Iran.
    Abbasi, Reza
    Kerman University of Medical Sciences, Kerman, Iran.
    Impact of the Bam Earthquake, 26 December 2003, on Activities of Daily Living and Instrumental Activities of Daily Living of Older People2011In: Prehospital and Disaster Medicine, ISSN 1049-023X, E-ISSN 1945-1938, Vol. 26, no 2, p. 99-108Article in journal (Refereed)
    Abstract [en]

    INTRODUCTION: This study compares self-reported Activities of Daily Living (ADL) and Instrumental Activities of Daily Living (IADL) status among elderly survivors of the 2003 Bam Earthquake before, two months after, and five years after the event, and explores related determinants.

    METHODS: A two-stage cluster survey was conducted on 210 elderly survivors in the earthquake-stricken area five years after the event.

    RESULTS: Both ADL and IADL scores decreased two months after earthquake compared to prior status (p <0.001). No differences were observed between two months and five years after the event (p >0.05). Access to medical services were not related to level of ADL or IADL (p = 0.52 and p = 0.74, respectively). Elderly survivors with lower functional capability in terms of ADL experienced more problems in access to relief items (p = 0.04), but no similar association was found for IADL (p = 0.26).

    CONCLUSION: The Bam earthquake adversely affected functional capacity of the elderly. Disaster responders must take into account functional capacity of elders when planning for medical and relief operations.

  • 7.
    Ernstsson, Olivia
    et al.
    Department of Learning, Informatics, Management and Ethics, Karolinska Institutet; Department of Clinical Neuroscience, Karolinska Institutet.
    Gyllensten, Hanna
    Department of Clinical Neuroscience, Karolinska Institutet.
    Alexanderson, Kristina
    Department of Clinical Neuroscience, Karolinska Institutet.
    Tinghög, Petter
    Department of Clinical Neuroscience, Karolinska Institutet; The Swedish Red Cross University College.
    Friberg, Emilie
    Department of Clinical Neuroscience, Karolinska Institutet.
    Norlund, Anders
    Department of Clinical Neuroscience, Karolinska Institutet.
    Cost of Illness of Multiple Sclerosis: A Systematic Review2016In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 11, no 7, article id e0159129Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Cost-of-illness (COI) studies of Multiple Sclerosis (MS) are vital components for describing the economic burden of MS, and are frequently used in model studies of interventions of MS. We conducted a systematic review of studies estimating the COI of MS, to compare costs between studies and examine cost drivers, emphasizing generalizability and methodological choices.

    MATERIAL AND METHOD: A literature search on studies published in English on COI of MS was performed in PubMed for the period January 1969 to January 2014, resulting in 1,326 publications. A mapping of studies using a bottom-up approach or top-down approach, respectively, was conducted for the 48 studies assessed as relevant. In a second analysis, the cost estimates were compared between the 29 studies that used a societal perspective on costs, human capital approach for indirect costs, presenting number of patients included, time-period studied, and year of price level used.

    RESULTS: The mapping showed that bottom-up studies and prevalence approaches were most common. The cost ratios between different severity levels within studies were relatively stable, to the ratio of 1 to 2 to 3 for disability level categories. Drugs were the main cost drivers for MS-patients with low disease severity, representing 29% to 82% of all costs in this patient group, while the main cost components for groups with more advanced MS symptoms were production losses due to MS and informal care, together representing 17% to 67% of costs in those groups.

    CONCLUSION: The bottom-up method and prevalence approach dominated in studies of COI of MS. Our findings show that there are difficulties in comparing absolute costs across studies, nevertheless, the relative costs expressed as cost ratios, comparing different severity levels, showed higher resemblance. Costs of drugs were main cost drivers for less severe MS and informal care and production losses for the most severe MS.

  • 8.
    Gyllensten, Hanna
    et al.
    Karolinska Institutet; University of Gothenburg.
    Kavaliunas, Andrius
    Karolinska Institutet.
    Murley, Chantelle
    Karolinska Institutet.
    Alexanderson, Kristina
    Karolinska Institutet.
    Hillert, Jan
    Karolinska Institutet; Karolinska University Hospital.
    Tinghög, Petter
    The Swedish Red Cross University College, Department of Health Sciences. Karolinska Institutet.
    Friberg, Emilie
    Karolinska Institutet.
    Costs of illness progression for different multiple sclerosis phenotypes: a population-based study in Sweden2019In: Multiple Sclerosis Journal Experimental, Translational and Clinical, ISSN 2055-2173, Vol. 5, no 2, article id 2055217319858383Article in journal (Refereed)
    Abstract [en]

    Background

    Population-based estimates of costs of illness and health-related quality of life, by disability levels among people with multiple sclerosis, are lacking.

    Objectives

    To estimate the annual costs of illness and health-related quality of life, by disability levels, among multiple sclerosis patients, 21–64 years of age.

    Methods

    Microdata from Swedish nationwide registers were linked to estimate the prevalence-based costs of illness in 2013, including direct costs (prescription drug use and specialised healthcare) and indirect costs (calculated using sick leave and disability pension), and health-related quality of life (estimated from the EQ-5D). Disability level was measured by the Expanded Disability Status Scale (EDSS).

    Results

    Among 8906 multiple sclerosis patients, EDSS 0.0–3.5 and 7.0–9.5 were associated with mean indirect costs of SEK 117,609 and 461,357, respectively, whereas direct costs were similar between the categories (SEK 117,423 and 102,714, respectively). Prescription drug costs represented 40% of the costs of illness among multiple sclerosis patients with low EDSS, while among patients with high EDSS more than 80% were indirect costs. Among the 1684 individuals who had reported both EQ-5D and EDSS, the lowest health-related quality of life scores were found among those with a high EDSS.

    Conclusion

    Among people with multiple sclerosis, we confirmed higher costs and lower health-related quality of life in higher disability levels, in particular high indirect costs.

  • 9.
    Karp, Anita
    et al.
    Stiftelsen Äldrecentrum.
    Wånell, Sven Erik
    Stiftelsen Äldrecentrum.
    Lagerin, Annika
    CeFAM.
    Rydeman, Ing-Britt
    Stiftelsen Äldrecentrum.
    Sherman, Helena
    CeFAM.
    Söderhielm Blid, Susanne
    CeFAM.
    Törnkvist, Lena
    CeFAM.
    Förebyggande hembesök: Hälsosamtal med 75-åringar i Stockholms läns landsting2010Report (Other academic)
  • 10.
    Kulprateepunya, Kunthida
    et al.
    Borommarajonnani College of Nursing, Sanpasithiprasong, Ubon Ratchathani, Thailand.
    Kijsonporn, Jureerat
    Praboromarajchanok Institute office of Permanent Sectretary for Public Health, Thailand.
    Eriksson, Henrik
    School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna.
    Müllersdorf, Maria
    School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna.
    Comparing Nursing Competencies between Community health care settings and hospital settings Using stakeholders satisfaction as outcome2014In: Quality of Life and Law Journal, ISSN 1686-9443, Vol. 10, no 1, p. 173-190Article in journal (Other academic)
    Abstract [en]

    The Objectives to study was to determine if there were differences in levels of satisfaction regarding nursing competencies between stakeholders working in community health care settings and those working in hospital settings during 2008-2010. The participants consisted of 466 stakeholders who were either graduate nurses´supervisors or colleagues during 2008-2010. Data was collected using questionnaires, statistics analysis were descriptive and t-test.

    The results showed that the significantly different levels of satisfaction between the stakeholders in community health care settings and those in hospital settings concerning professional and basic competencies. The results concerning professional etics showed no significant differences between the stakeholders´assessments. The result suggest that the graduates working in community health care were better prepared to o provide high quality care than graduates working in hospital settings. Furthermore, the interaction between nursing colleges and stakeholders from different areas and with different professional competencies is beneficial for developing the nursing curriculum. Conclusion According to stakeholders, the graduates in the communities are more prepared to provide care with high quality than in hospital settings.

    The recommendations from this research found that Finally, developing nursing education so that it reflects contemporary nursing practice and collaboration with stakeholders in different settings is important.

  • 11.
    Okenwa-Emegwa, Leah
    et al.
    The Swedish Red Cross University College. University of Gavle.
    Dalal, Koustuv
    University of Orebro.
    Length of Stay in Hospital Following Occupational Injury2018In: Journal of Epidemiology and Public Health Reviews, ISSN ISSN 2471-8211, Vol. 3, no 1, p. 1-6Article in journal (Refereed)
    Abstract [en]

    Background: Length of stay in hospital (LOS) is regarded as a useful indicator of morbidity and an important determinant of medical care cost. LOS has been shown to have implications for post injury functionality, return to work, sickness absence and some psychosocial health outcomes such as quality of life. However, not much is known about LOS following occupational injury. The present study examined LOS and its predictors in a population of Swedish workers injured at work, and admitted for hospital care between 2007 and 2012.

    Methods: The study is based on data from the Swedish Working Environment Agency and hospital records of injured workers in the county of Gävleborg, Sweden. Specifically those admitted and discharged alive during the period under review.

    Results: A total of 1608 cases were identified, 34.4% were from the manufacturing sector, 32.2% had injuries of the upper extremities, mean LOS was 2.78 days. Individual level independent predictors of LOS were employment and injury location. Factors such as referrals, admitting ward and diagnose related groups (DGRs) were hospital level predictors of LOS. Injured workers admitted to the orthopedic ward and those referred from other clinics had approximately four fold likelihood of LOS greater than 3days.

    Discussion: The findings show individual and hospital level factors were identified as predictors of LOS in hospital following an occupational injury. The likely implications of these findings are discussed.

  • 12.
    Omar, Faisal
    et al.
    Department of Medical and Health Sciences, Linköping University.
    Tinghög, Gustav
    Department of Medical and Health Sciences, Linköping University.
    Tinghög, Petter
    Department of Medical and Health Sciences, Linköping University.
    Carlsson, Per
    Department of Medical and Health Sciences, Linköping University.
    Attitudes towards priority-setting and rationing in healthcare: an exploratory survey of Swedish medical students2009In: Scandinavian Journal of Public Health, ISSN 1403-4948, E-ISSN 1651-1905, Vol. 37, no 2, p. 122-130Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Healthcare priority-setting is inextricably linked to the challenge of providing publicly funded healthcare within a limited budget, which may result in difficult and potentially controversial rationing decisions. Despite priority-setting's increasing prominence in policy and academic discussion, it is still unclear what the level of understanding and acceptance of priority-setting is at different levels of health care.

    AIMS: The aim of this study is threefold. First we wish to explore the level of familiarity with different aspects of priority-setting among graduating medical students. Secondly, to gauge their acceptance of both established and proposed Swedish priority-setting principles. Finally to elucidate their attitudes towards healthcare rationing and the role of different actors in decision making, with a particular interest in comparing the attitudes of medical students with data from the literature examining the attitudes among primary care patients in Sweden.

    METHODS: A cross-sectional survey containing 14 multiple choice items about priority-setting in healthcare was distributed to the graduating medical class at Linkoöping University. The response rate was 92% (43/47).

    RESULTS: Less than half of respondents have encountered the notion of open priority-setting, and the majority believed it to be somewhat or very unclear. There is a high degree of awareness and agreement with the established ethical principles for priority-setting in Swedish health care; however respondents are inconsistent in their application of the cost-effectiveness principle. A larger proportion of respondents were more favourable to physicians and other health personnel being responsible for rationing decisions as opposed to politicians.

    CONCLUSIONS: Future discussion about priority-setting in medical education should be contextualized within an explicit and open process. There is a need to adequately clarify the role of the cost-effectiveness principle in priority-setting. Medical students seem to acknowledge the need for rationing in healthcare to a greater extent when compared with previous results from Swedish primary care patients.

  • 13.
    Rydeman, IngBritt
    Centrum för Allmänmedicin.
    Avvikelser i samband med in- och utskrivning av patienter från slutenvården: Projekt i Botkyrka kommun 2009- 20102011Report (Other academic)
  • 14.
    Rydeman, IngBritt
    FoU Seniorium.
    Håll igång: Regelbunden fysisk träning på biståndsbedömd dagverksamhet : Slutrapport januari 20142014Report (Other academic)
  • 15.
    Rydeman, IngBritt
    et al.
    Centrum för Allmänmedicin.
    Törnkvist, Lena
    Centrum för Allmänmedicin.
    Utskrivningsplanering för äldre: samverkan och samordning i vårdkedjan / Rapporten har tagits fram av IngBritt Rydeman Lena Törnkvist2006Report (Other academic)
  • 16.
    Salzmann-Erikson, Martin
    et al.
    University of Gävle.
    Eriksson, Henrik
    The Swedish Red Cross University College, Department of Nursing and Care.
    Letter to the Editor: Prosperity of nursing care robots: an imperative for the development of new infrastructure and competence for health professions in geriatric care2017In: Journal of Nursing Management, ISSN 0966-0429, E-ISSN 1365-2834, Vol. 25, no 6, p. 486-488Article in journal (Other academic)
  • 17.
    Silow Kallenberg, Kim
    The Swedish Red Cross University College, Department of Health Sciences. Södertörns högskola.
    Det som sitter i väggarna: tvångsvård mellan stabilitet och förändring2017In: Kulturella perspektiv - Svensk etnologisk tidskrift, ISSN 1102-7908, Vol. 26, no 3-4, p. 39-45Article in journal (Refereed)
  • 18.
    Wiberg, Michael
    et al.
    Department of Clinical Neuroscience, Karolinska Institutet.
    Friberg, Emilie
    Department of Clinical Neuroscience, Karolinska Institutet.
    Stenbeck, Magnus
    Department of Clinical Neuroscience, Karolinska Institutet.
    Alexanderson, Kristina
    Department of Clinical Neuroscience, Karolinska Institutet.
    Norlund, Anders
    Department of Clinical Neuroscience, Karolinska Institutet.
    Hillert, Jan
    Department of Clinical Neuroscience, Karolinska Institutet.
    Tinghög, Petter
    Department of Clinical Neuroscience, Karolinska Institutet.
    Sources and level of income among individuals with multiple sclerosis compared to the general population: A nationwide population-based study.2015In: Multiple Sclerosis, ISSN 1352-4585, E-ISSN 1477-0970, Vol. 21, no 13, p. 1730-1741Article in journal (Refereed)
    Abstract [en]

    INTRODUCTION: Multiple sclerosis (MS) is associated with reduced work capacity, but there is limited knowledge about MS patients' sources of income.

    OBJECTIVES: The purpose of this study was to elucidate MS patients' earnings and social benefits compared to those of the general population.

    METHODS: From nationwide registers of all residents in Sweden aged 21-64 years in 2010 (n=5,291,764), those with an MS diagnosis (n=13,979) were compared to a propensity score matched reference group (n=69,895). Descriptive statistics and regression models were used to estimate the percentage difference between the MS patients and the matched references regarding the following annual incomes: earnings, disability pension, sickness absence, disability allowance, unemployment compensation and social assistance.

    RESULTS: Both MS patients and the matched references received most of their income from earnings followed by disability pension and sickness absence. MS patients that were diagnosed in 2010 had 15% lower earnings than the matched references, while MS patients diagnosed before 2005 had 38% lower earnings. Corresponding figures regarding summed social benefits were 33% and 130% higher for MS patients, respectively.

    CONCLUSION: The results indicate that MS patients are overrepresented, in relative and absolute terms, regarding health-related benefits and have lower levels of earnings. However, the redistributing welfare systems appear to financially compensate the MS patients considerably.

  • 19. Östlund, Britt
    Hur kan teknik skapa möjligheter för äldre människor?2012In: E-hälsa: innovationer, metoder, interventioner och perspektiv. / [ed] Gunvor Gard, Anita Melander Wikman, Studentlitteratur AB, 2012, p. 209-221Chapter in book (Other academic)
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