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  • 1.
    Arman, Maria
    et al.
    Karolinska Institute.
    Backman, Marie
    Röda Korsets Högskola.
    A longitudinal study on women's experiences of life with breast cancer in anthroposophical (complementary) and conventional care2007Ingår i: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 16, nr 5, s. 444-450Artikel i tidskrift (Refereegranskat)
  • 2.
    Bergkvist, K
    et al.
    Sophiahemmet University / Karolinska Institutet.
    Fossum, B
    Sophiahemmet University / Karolinska Institutet.
    Johansson, U-B
    Sophiahemmet University / Karolinska Institutet.
    Mattsson, J
    Karolinska University Hospital Huddinge / Karolinska Institutet.
    Larsen, Joacim
    Röda Korsets Högskola, Avdelningen Vård och Omvårdnad.
    Patients' experiences of different care settings and a new life situation after allogeneic haematopoietic stem cell transplantation2018Ingår i: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 27, nr 1, artikel-id e12672Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Over the past 20 years, considerable healthcare resources have shifted from an inpatient to an outpatient setting. To be in an outpatient setting or at home after allogeneic haematopoietic stem cell transplantation (allo-HSCT) has been shown to be medically safe and beneficial to the patient. In this study we describe patients' experiences of different care settings (hospital or home) and a new life situation during the acute post-transplant phase after HSCT. Semi-structured interviews were conducted with 15 patients (six women and nine men) 29-120 days after HSCT. An inductive qualitative content analysis was performed to analyse the data. The analysis resulted in four categories: To be in a safe place, To have a supportive network, My way of taking control, and My uncertain return to normality. The findings showed that patients undergoing HSCT felt medically safe regardless of the care setting. The importance of a supportive network (i.e. the healthcare team, family and friends) was evident for all patients. Both emotional and problem-focused strategies were used to cope with an uncertain future. Being at home had some positive advantages, including freedom, having the potential for more physical activity, and being with family members. The study highlights some key areas thought to provide more personalised care after HSCT.

  • 3.
    Bergkvist, K
    et al.
    Sophiahemmet University.
    Larsen, Joacim
    Röda Korsets Högskola, Avdelningen Vård och Omvårdnad.
    Johansson, U-B
    Sophiahemmet University / Södersjukhuset, Karolinska Institutet.
    Mattsson, J
    Karolinska University Hospital / Karolinska Institutet.
    Fossum, B
    Sophiahemmet University / Södersjukhuset, Karolinska Institutet.
    Family members' life situation and experiences of different caring organisations during allogeneic haematopoietic stem cells transplantation: A qualitative study2018Ingår i: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 7, nr 1, artikel-id e12610Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim of this study was to describe family members' life situation and experiences of care in two different care settings, the patient's home or in hospital during the acute post-transplantation phase after allogeneic haematopoietic stem cell transplantation (HSCT). Data were collected through semi-structured interviews with 14 family members (seven women and seven men). An inductive qualitative content analysis was used to analyse the data. The majority of the family members' (n = 10) had experiences from home care. The findings show the family members' voice of the uncertainty in different ways, related with the unknown prognosis of the HSCT, presented as Being me being us in an uncertain time. The data are classified into; To meet a caring organisation, To be in different care settings, To be a family member and To have a caring relationship. Positive experiences such as freedom and security from home care were identified. The competence and support from the healthcare professionals was profound. Different strategies such as adjusting, having hope and live in the present used to balance to live in an uncertain time. The healthcare professionals need to identify psychosocial problems, and integrate the psychosocial support for the family to alleviate or decrease anxiety during HSCT, regardless of the care setting.

  • 4. Edman, L
    et al.
    Larsen, Joacim
    Department of Nursing Department of Haematology, Karolinska Institutet Nursing Care Research and Development Unit, Huddinge University Hospital.
    Hägglund, H
    Gardulf, A
    Health-related quality of life, symptom distress and sense of coherence in adult survivors of allogeneic stem-cell transplantation2001Ingår i: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, ISSN 0961-5423, Vol. 10, nr 2, s. 124-130Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This is the first Swedish study to evaluate the health-related quality of life and sense of coherence in adult survivors of allogeneic, haematopoietic stem cell transplantation (HSCT). Twenty-five recipients completed three questionnaires 2-4 years after the transplantation. The questionnaires used were the Sickness Impact Profile (SIP), the Symptom Frequency Intensity and Distress (SFID-BMT) scale and the Sense of Coherence (SOC) scale measuring subjective functional status, symptom distress and coping ability. Impairments in functional status were found, as compared with a population norm. The most common impairments were found in the areas of social interaction and sleep and rest. Eye problems, dry mouth, cough, sexual problems, tiredness, anxiety and changes of taste were symptoms reported by more than half of the patients. Despite impaired functioning and a high incidence of symptoms, the general health was described as quite good or excellent by 80% (n = 20) of the patients. The majority (20/22) had also been able to return to work or to attend school. No difference in the sense of coherence was seen, as compared with the population norm. Functional impairments were significantly correlated to a lower degree of sense of coherence.

  • 5.
    Larsen, Joacim
    et al.
    Department of Nursing, Karolinska Institutet, Stockholm.
    Nordström, G
    Björkstrand, B
    Ljungman, P
    Gardulf, A
    Symptom distress, functional status and health-related quality of life before high-dose chemotherapy with stem-cell transplantation2003Ingår i: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, ISSN 0961-5423, Vol. 12, nr 1, s. 71-80Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aims of this study were to describe how a group of patients with different malignant diseases perceived symptom distress (SD), functional status (FS) and health-related quality of life (HRQOL) on admission to the hospital for stem-cell transplantation (SCT), to compare the obtained data regarding FS and HRQOL with similar data from two general-population groups, and to relate the results to disease- and treatment-specific data. Fifty-one patients participated in the study. Three instruments were used to collect data: SFID-SCT, SIP and SWED-QUAL. The majority of the patients (92%) reported ongoing symptoms even before the SCT with tiredness (67%) and anxiety (53%) as the two most commonly reported symptoms. Although tiredness and anxiety were reported to be the most frequently occurring symptoms, these symptoms were not considered to cause that much distress. Instead, vomiting, reduced mobility and fever, although less commonly occurring, were reported as highly distressing when present. Compared with the general-population groups, the patients reported significantly poorer FS and HRQOL but no statistically significant correlations were found between SD, FS or HRQOL and the time since the last chemotherapy cycle or cycles respectively. Patients with advanced disease and patients with multiple myeloma were found to report more SD and poorer FS and HRQOL.

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