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  • 1.
    Bergfors, Sofi
    et al.
    Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm; Stockholm County Council, Health Care Services, Stockholm.
    Åström, Mimmi
    Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm; Stockholm County Council, Health Care Services, Stockholm.
    Burström, Kristina
    Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm; Stockholm County Council, Health Care Services, Stockholm; Department of Public Health Sciences, Equity and Health Policy Research Group, Karolinska Institutet, Stockholm.
    Egmar, Ann-Charlotte
    The Swedish Red Cross University College. Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm.
    Measuring health-related quality of life with the EQ-5D-Y instrument in children and adolescents with asthma2015In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 104, no 2, p. 167-173Article in journal (Refereed)
    Abstract [en]

    AIM: Asthma is one of the most common chronic paediatric diseases worldwide and affects different dimensions of health-related quality of life. This study tested the feasibility and convergent validity of using the EQ-5D-Y instrument on children and adolescents with asthma.

    METHODS: A cross-sectional design was chosen, and children with asthma, aged from 8 to 16 years, were recruited from clinics in Stockholm, Sweden. To test convergent validity, the EQ-5D-Y instrument was combined with the Paediatric Quality of Life Questionnaire.

    RESULTS: The EQ-5D-Y proved feasible as nearly 96% of the 94 respondents completed all items on the questionnaire. High and moderate correlations between the two instruments were found for the dimensions of 'doing usual activities' and 'activity limitations' and for 'having pain or discomfort' and 'symptoms'. The visual analogue scale of the ED-5D-Y correlated with the Paediatric Quality of Life Questionnaire total score and the self-rated health question. The dimensions on the EQ-5D-Y with most reported problems were 'usual activities', 'pain or discomfort' and 'worried, sad or unhappy'.

    CONCLUSION: The EQ-5D-Y instrument seemed to provide feasibility and convergent validity for measuring health-related quality of life in children and adolescents with asthma.

  • 2.
    Burström, Kristina
    et al.
    Department of Learning Informatics Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden; Department of Public Health Sciences, Equity and Health Policy Research Group, Karolinska Institutet, Stockholm, Sweden; Stockholm County Council, Health Care Services, Stockholm, Sweden.
    Bartonek, Å
    Department of Women’s and Children’s Health, Karolinska Institutet, Stockholm, Sweden; Astrid Lindgren’s Children’s Hospital, Karolinska University Hospital, Stockholm, Sweden.
    Broström, EW
    Department of Women’s and Children’s Health, Karolinska Institutet, Stockholm, Sweden;Astrid Lindgren’s Children’s Hospital, Karolinska University Hospital, Stockholm, Sweden.
    Sun, S
    Department of Learning Informatics Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden; Department of Public Health Sciences, Equity and Health Policy Research Group, Karolinska Institutet, Stockholm, Sweden; Stockholm County Council, Health Care Services, Stockholm, Sweden.
    Egmar, Ann-Charlotte
    The Swedish Red Cross University College. Department of Learning Informatics Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden.
    EQ-5D-Y as a health-related quality of life measure in children and adolescents with functional disability in Sweden: testing feasibility andvalidity2014In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 103, no 4, p. 426-435Article in journal (Refereed)
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