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  • 1.
    Kraft, Mia
    et al.
    The Swedish Red Cross University College, Department of Nursing and Care.
    Kästel, Anne
    The Swedish Red Cross University College, Department of Nursing and Care.
    Eriksson, Henrik
    The Swedish Red Cross University College, Department of Nursing and Care.
    Rydholm Hedman, Ann-Marie
    The Swedish Red Cross University College, Department of Nursing and Care.
    Global Nursing: a literature review in the field of education and practice2017In: Nursing Open, E-ISSN 2054-1058, Vol. 4, no 3, p. 122-133Article, review/survey (Refereed)
  • 2.
    Kästel, Anne
    The Swedish Red Cross University College.
    Familjemedverkan inom barnonkologi2008Licentiate thesis, monograph (Other academic)
  • 3.
    Kästel, Anne
    et al.
    The Swedish Red Cross University College.
    Enskär, Karin
    Högskolan i Jönköping, HHJ, Avd. för omvårdnad.
    Family participation in childhood cancer care2013In: Journal of Nursing Education and Practice, ISSN 1925-4040, E-ISSN 1925-4059, Vol. 4, no 3, p. 112-123Article in journal (Refereed)
    Abstract [en]

    Background: Child cancer care is becoming increasingly successful, the treatment brought more success through intensified therapy, but this development has not been easy to achieve due to the pain and anxiety that the treatment often causes. It is not possible to eliminate the chaos the family experiences, but it can be reduced through a deepened understanding of the situation.

    Purpose: The aim of the study is to highlight families views on participation in childhood cancer care.

    Method: A qualitative design, appropriate to gain a holistic view, has been chosen. Eight families with children diagnosed with cancer, of various ages and gender and from various backgrounds, participated in five interviews each during the first year of the child´s illness.

    Findings: The families constitute a cornerstone in paediatric oncology care today, but the results indicate that all the various tasks and commitments for the families, sometimes entail too heavy a burden. They are in need of better support and clearer instructions to be able to cope with the situation including rules and measures concerning the child. Therefore, it is urgent to clarify who has the formal responsibility for medical consequences that might occur in connection with delegated responsibility. The study shows that there is a lack of pedagogical thought and a need to create a pedagogical model.

    Conclusion: There is a need for guiding principles and education for the parents, which would contribute to their increased confidence.

  • 4.
    Kästel, Anne
    et al.
    Astrid Lindgren Childrens Hosp, Paediat Oncol Unit, Stockholm.
    Enskär, Karin
    Jönköping Univ, Sch Hlth Sci, Dept Nursing Sci.
    Parental views on participation in childhood cancer care2007In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 49, no 4, p. 557-557Article in journal (Other academic)
  • 5.
    Kästel, Anne
    et al.
    The Swedish Red Cross University College. Karolinska Univ Hosp, Stockholm.
    Enskär, Karin
    Jönköping Univ, Sch Hlth Sci, Dept Nursing Sci.
    Björk, Olle
    Karolinska Inst, Paediat Oncol Unit.
    Parents’ views on information in childhood cancer care2011In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 15, no 4, p. 290-295Article in journal (Refereed)
    Abstract [en]

    Purpose

    The aim of the study is to highlight parents’ views on information in childhood cancer care.

    Method

    A qualitative design, appropriate to gain a holistic view, has been chosen. Eight families with children diagnosed with cancer, of various ages and gender and from various backgrounds, participated in five interviews each during the first year of the child’s illness.

    Results

    If the parents’ needs were fulfilled, they were better equipped to handle the illness of their child, which is totally dependant on how the matter of information is dealt with. Information is a complex and demanding issue for the persons involved and the families’ views were divergent in this area. Sometimes they seemed to obtain the information successfully and sometimes there were great problems in this respect. Therefore their preferences must be considered.

    Conclusion

    There has to be an improvement from the aspects of what, when and how information is provided. The major findings of this study indicate that the families need better support and more distinct instructions to be able to cope with the situation.

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